Our first attempt at a Zoom meeting last Saturday was a great success and we plan to repeat the exercise on the above date.
It was a good opportunity for those newly diagnosed with KC to meet seasoned travellers. The message that came across load and clear was that we need to communicate with the young and newly diagnosed to ensure that they are fully informed about Cross Linking (CXL) and where to get it.
Consequently, as well as sharing experiences, we discussed ways to publicise the charity through social media.
Please join us to discuss all things KC; we are totally open with no pre planned agenda.
Just email ukkeratoconus@gmail.com and I will send a link for the meeting. A further link will be sent the day before as a reminder.
I hope to see you then.
David
KC Coffee Morning 8th August at 10:30 on Zoom
Moderators: Anne Klepacz, John Smith, Sweet
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DavidGable
- Committee
- Posts: 32
- Joined: Mon 10 Sep 2012 7:37 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and spectacles
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space_cadet
- Champion
- Posts: 960
- Joined: Tue 12 May 2009 11:46 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Leeds
- Contact:
Re: KC Coffee Morning 8th August at 10:30 on Zoom
Sounds good David, just remind me closer to the time please?
Saturday was lovely to chat to people.
x
Saturday was lovely to chat to people.
x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world
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DavidGable
- Committee
- Posts: 32
- Joined: Mon 10 Sep 2012 7:37 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and spectacles
Re: KC Coffee Morning 8th August at 10:30 on Zoom
It was nice to see your daughter. Good luck with your last few weeks of pregnancy.
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space_cadet
- Champion
- Posts: 960
- Joined: Tue 12 May 2009 11:46 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Leeds
- Contact:
Re: KC Coffee Morning 8th August at 10:30 on Zoom
DavidGable wrote:It was nice to see your daughter. Good luck with your last few weeks of pregnancy.
thank you x Jemima says hi too
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world
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