you may recall all the stress I have had over the last few years with my eyes, n how I had lost any confidence in the NHS n hospital so over the summer, inspired by the conference which was in June I decided to be brave n go for a second opinion privatley, which initally resulted in a pair of glasses which comprised of plain glass for my left (un grafted useless eye) and a slight script for my right (grafted eye of once doom) the dude I saw wanted the hospital to do a topography to save me a few quid , so that happened then went back to nice private guy, I will call him Fred.
WOW! Fred managed to fit a Aspheri - KD lense and have it tweeked by Jack Allen lenses n after 2 days of now wearing it not for long but for long enough, it is comfortable, n the best bit I WAS ABLE TO SEE THE COOKING INSTRUCTIONS TO MAKE MY DAUGHTERS LUNCH BOTH YESTERDAY AND TODAY!! Wearing it in the grafted eye
This may sound like minor or small steps but for me it is HUGE!
So I thought I would share, now to find where I put the hylo forte hydration drops as left eye feels rather dry , gotta love Blepharitus!
Some good news
Moderators: Anne Klepacz, John Smith, Sweet
- space_cadet
- Champion
- Posts: 960
- Joined: Tue 12 May 2009 11:46 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Leeds
- Contact:
Some good news
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world
-
- Regular contributor
- Posts: 131
- Joined: Tue 04 Oct 2005 4:05 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: Leicestershire
Re: Some good news
Great news, really glad for you.
-
- Newbie
- Posts: 8
- Joined: Tue 22 Oct 2013 4:01 pm
- Keratoconus: No, I don't suffer from KC
- Vision: I'm coping with no aids
Re: Some good news
Space cadet despite all that you've been through, ( have read your posts) I love the way you write and I AM SO HAPPY TO HEAR SOME GOOD NEWS FOR YOU!!!!
Good wishes always. x
Good wishes always. x
- Elizabeth Mair
- Moderator
- Posts: 120
- Joined: Sun 14 Mar 2004 4:56 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: East Kilbride
Re: Some good news
Great news. That will be make a big difference to you and your daughter.
It also proves that helpful info can be picked up at KC conferences, and also a support group meetings.
It also proves that helpful info can be picked up at KC conferences, and also a support group meetings.
- space_cadet
- Champion
- Posts: 960
- Joined: Tue 12 May 2009 11:46 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Leeds
- Contact:
Re: Some good news
thanks all 
Last night I got a take away with my partner we gave mini space_cadet some rice a while later I noticed she had a single grain in her ear
sounds small but to me was n is huge made me cry happy tears x

Last night I got a take away with my partner we gave mini space_cadet some rice a while later I noticed she had a single grain in her ear

May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world
- Andrew MacLean
- Moderator
- Posts: 7703
- Joined: Thu 15 Jan 2004 8:01 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Scotland
Re: Some good news
Actually you are wrong. That doesn't sound like a small thing, it sounds like a huge step forward! Well done, Space cadet.
Andrew MacLean
- Sweet
- Committee
- Posts: 2240
- Joined: Sun 10 Apr 2005 11:22 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: London / South Wales
Re: Some good news
Space_cadet,
That is brilliant news!! Was lovely chatting to you last week!
i am so glad that things are getting better for you! It sounds like a HUGE thing to be able to see so much with a lens and that it is comfortable!
Love claire Xxx
That is brilliant news!! Was lovely chatting to you last week!
i am so glad that things are getting better for you! It sounds like a HUGE thing to be able to see so much with a lens and that it is comfortable!
Love claire Xxx
Sweet X x X


- space_cadet
- Champion
- Posts: 960
- Joined: Tue 12 May 2009 11:46 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Leeds
- Contact:
Re: Some good news
thanks Andrew n Sweet. Tonight is a close friends birthday meal n I am going to hold off lens time till later so I can order off the menu not the same thing I get every time I am in this particular restaurant as it has become habbit to have the same dish in places as saves the awkwardness of not being able to see the menu.
x
x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world
- jay87
- Regular contributor
- Posts: 146
- Joined: Tue 11 Oct 2011 9:24 am
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: Peterborough, Cambs, UK
Re: Some good news
Great news Leah,
I am glad these lenses are really helping your visual aquity
It does improve your quality of life so much doesn't it, the small things most people take for granted like reading text.
I have Jack Allen Profile RGP lenses in both eyes, I do think they are a great lens manufacturer, and an independent as far as I can tell. Good to see, and long may their lenses continue.
I am glad these lenses are really helping your visual aquity
It does improve your quality of life so much doesn't it, the small things most people take for granted like reading text.
I have Jack Allen Profile RGP lenses in both eyes, I do think they are a great lens manufacturer, and an independent as far as I can tell. Good to see, and long may their lenses continue.
Jake 
______________________________________________________
-4.75D Left eye -9.25D Right eye Specs. No change since 2011.
Dx with KC Oct 2011. Rose K2 lenses & specs for vision, using Peroxide & Pres. Free Eye Drops

______________________________________________________
-4.75D Left eye -9.25D Right eye Specs. No change since 2011.
Dx with KC Oct 2011. Rose K2 lenses & specs for vision, using Peroxide & Pres. Free Eye Drops
Return to “General Discussion Forum”
Who is online
Users browsing this forum: No registered users and 29 guests