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General forum for the UK Keratoconus and self-help group members.

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Michelle Oates
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Posts: 69
Joined: Wed 13 Apr 2005 5:27 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Cleethorpes,N E Lincolnshire
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Hi Am new here

Postby Michelle Oates » Wed 13 Apr 2005 5:57 pm

Hi am new here to the forum but have had KC for about 10 years(28 now).
It is very advanced. I am currently wearing Rose K2 lenses but am due for a change of lens on friday. Apparently Accuity are doing some new ones. (anyone know of them)

what i wanted advice on is eye drops. I have been using sno tears for ages but its not working now. Are there any other drops i could use.
I do have scarring and abrasions on my eye and it is quite painful, blurry etc

Thanks
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jayuk
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Location: London / Manchester / Cheshire

Postby jayuk » Wed 13 Apr 2005 6:51 pm

Hi Michelle

Can I ask how advanced your KC is?

How did you get on with the Rose K 2 lenses as I am about to try them out....what is your vision with and without them?
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Lynn White
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Postby Lynn White » Wed 13 Apr 2005 8:00 pm

Hi Michelle...

Try Systane drops - they are much better than Sno tears which is hypromellose. Hypromellos eis a wetting agent only while Systane forms a gel on the eye which lasts for much longer and can help immensely with scarred areas...

Lynn
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Sweet
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Posts: 2240
Joined: Sun 10 Apr 2005 11:22 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: London / South Wales

Hello!

Postby Sweet » Wed 13 Apr 2005 9:09 pm

I need to second that as i am only just trying Systne out again after years of pain, and while it is not perfect it is getting better! It lasts a LOT longer than normal eye drops and my lens isn't as painful when i put it in.

Hope this helps you too! Take care

Claire X
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Michelle Oates
Regular contributor
Regular contributor
Posts: 69
Joined: Wed 13 Apr 2005 5:27 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Cleethorpes,N E Lincolnshire
Contact:
Contact Michelle Oates

Postby Michelle Oates » Thu 14 Apr 2005 9:35 am

Hi JayUk

The Rose K2 lens i found was difficult to fit right, i had to spend a lot of time manipulating my eyes to get it to fit right to be comfortable.

They are smaller than the ordinary Rose K.

It did settle down and i had fairly good vision with them.

They have only lasted 6 months though as i need a change.
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User avatar
Michelle Oates
Regular contributor
Regular contributor
Posts: 69
Joined: Wed 13 Apr 2005 5:27 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Cleethorpes,N E Lincolnshire
Contact:
Contact Michelle Oates

Re systane

Postby Michelle Oates » Thu 14 Apr 2005 9:42 am

Does anyone know where i could get systane from either shop, post, or web?
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Sweet
Committee
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Posts: 2240
Joined: Sun 10 Apr 2005 11:22 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: London / South Wales

Postby Sweet » Thu 14 Apr 2005 10:58 am

Michelle

Yes someone here posted it for me!

http://systane.co.uk/index.html

There is a link to stockists hope that helps

Claire
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