Postby longhoc » Tue 29 May 2012 2:58 pm
Hi there Jennie
Well, a graft is a big step. A really, really big step in fact !
It might be the right choice for you, but what isn't a good idea is to end up opting for a graft when there might have been much less draconian alternatives. My view is, unless and until you've exhausted every other possibility, you shouldn't opt for a graft lightly. It isn't a risk free procedure and the outcomes can leave you with much worse vision than you started off with -- the complexities of correcting post-graft vision are harder than if you've got your own cornea for the most part.
So, have you had a -- polite (-ish!) -- moan at your optometrist (the person who looks after your contact lenses) about how you're experiencing problems ? If they're just throwing up their hands and shrugging, you can ask for a different optom who might be familiar with all the types of lenese which can help Keratoconus. If you've experimented with soft lenses for Keratoconus, semi-sclerals, sclerals and hybrids (part RGP, part soft lens) then you've been there and done that -- so do tell me if you've tried everything.
If you're convinced that lenses are not and never will be the answer, then you'll need to go to your GP in Primary Care (or, depending on how you get your lenses, if it is at a hospital then the optometrist there might be able to get this sorted) for a referal to an opthalmologist. They can give you guidence on a graft. Or you can see an opthalmologist privately. Waiting times on the NHS aren't the best, so if you're at the end of your patience this will speed things up.
That all said, I was in the same position as you. I'd really given all the lens types (short of sclerals) a go and I ended up coming to the conclusion that a graft was the only way forward that I could live with. So I know how you feel.
Does any of that help you with your decision ?
Best wishes, and a good chunk of sympathy too.
Chris