Where do I go from here?

[danielk]

Hi. First time poster here. My names Dan, and I was diagnosed with KC when I was 15. I'm now almost 22, and had a graft in my left eye about 5 years ago. The graft didnt work as well as it was hoped (cannot even make out the top letter on an eye chart - no where close even), but the vision increases substantially with gas permiable contact lenses - just a shame that its agony to wear. I also had refractive surgery about 2 years ago.

I've been up and down to my local hospital dozens of times - most of the time to no avail. In fact, at one point, the "specialist" actually mentioned giving up and calling it a spare! Fair enough, still have my right eye.

About a year ago, I noticed some familiar halo/starburst/"comet tail"/double vision in my right eye. Proceeded to Opticians where the man who diagnosed me originally, said that there was definite KC shadowing in my right eye. My most recent visit to the hopsital was last thursday. I had a topograph of both corneas, and it was concluded on their part that there was no KC evident in the right eye - despite there being a rather large steep section in the lower center of the cornea, and some flattening around the centre. When I asked them what my deteriortaing eyesight was due to, they said they didnt know - maybe it was eyestrain!

I'm no expert at all, but I've got the same visual artifacts present as in my early days with KC in my left eye, and rather steep sections. I dont know who to believe, the specialist up the hospital, or, the optician, my deteriorating eyesight, and the topograph image with a huge section of red on it? - Maybe it could be a related disorder? I.E. Pellucid Marginal Degeneration? Maybe that is why they believe I havnt KC?

Also, quick side track. As I'm unable to wear contacts (terrible irritation, and I have pretty bad allergies - lots of eye rubbing), anyone looked into those plastic half discs they can insert behind the cornea? Just a thought.

Not quite sure where to go from here? Who to contact, specialist clinics? Any thoughts? Thanks for your time, - Dan.

[GarethB]

If you are getting conflicting information between the specialist and optician, I would go to your GP and explain the situation and asked to be refered to a different specialist in the first instance for a second opinion.

I am sue others here will be able to offer further advice.

good luck.

Gareth

[Sajeev]

Good advice Gareth......

Dan.....Just hang in there buddy.....just do what you have to do.....to find the best option for you......

Look around....there are more options than you think......but you must first educate your self to the alternatives and then you need to decide for your-self (and only for your-self)

.....I can say no more.....

Take Care

[GarethB]

I do not know if sclerals are an option as I have never used them so do not know how they sit on the eye.

Might be an option worth investigating. I have also found the type of solution used can affect my wear time for RGP's. Bosch & Lomb or Boots. Any others restyricts my wear time even though you would think all solutions were the same!

Let us know how you progress.