keraflex

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Lynn White
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Re: keraflex

Postby Lynn White » Tue 19 Jul 2011 7:18 pm

Hi Harker,

This is a bit if a difficult question to answer. You may think that better initial acuity means the condition is less advanced and therefore the recovery time is faster. However, the more central the thin area (and therefore the "cone") the more profoundly is the vision affected.Thus someone with very mild KC which is central will have worse vision than more advanced KC where the "cone"is offest or low.

Additionally, the offset varieties tend to produce better VA but more ghosting, as you describe.

It is very difficult to predict recovery time as there are so many factors involved. Previous contact lens wear can be an issue and my experience is that spectacle wearers do recover faster..... HOWEVER, spectacle wearers tend to be more critical about their vision, as its good to start off with. There are people with KC who do not achieve your acuity even WITH CLs. If vision without them is very poor, they will simply not notice visual fluctuations, whereas you will be aware of very small changes.

Lynn
Lynn White MSc FCOptom
Optometrist Contact Lens Fitter
Clinical Director, UltraVision

email: lynn.white@lwvc.co.uk

harker
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Joined: Sun 12 Dec 2010 11:52 am
Keratoconus: Yes, I have KC
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Re: keraflex

Postby harker » Wed 20 Jul 2011 8:51 am

That sounds about right - I can even see on the topography scans that the cone is slightly higher in my worse eye. I suspect I may well come out of the CXL with vision that might be slightly worse with glasses, but I'd rather take that chance now than have my specs vision naturally get worse over time. Anyway, those concerns are for another thread!

liam82
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Keratoconus: Yes, I have KC
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Re: keraflex

Postby liam82 » Wed 20 Jul 2011 12:54 pm

harker wrote:Lynn - in your experience, do patients with higher acuity before CXL recover faster or slower?

I have bad ghosting with specs, but I'm still 20/20 in the right eye and 20/30 in the left. I'm having CXL done in a couple of weeks (left eye first) and I was wondering if being a specs wearer means I should be able to get some decent corrected vision out of the eye a little faster.

Also, most discussion of CXL fluctuation seems to focus on acuity. Can I expect my ghosts to fluctuate in shape or size while its settling?


Id say yes. I guess its different for everyone, but after cxl for a time all my ghosting from left eye went away. The vision was not clear, but the ghosting had gone, then it got worse, then it got better.

Its very up and down, and you'll notice changes quite frequently as I have over the last 8/9 weeks or so.

The only thing you can do is remain calm, its easy to panic, like I did and think its actually made things worse....but its something that is very up and down over a long period of time.

Marctec
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Joined: Thu 14 Jul 2011 7:40 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses

Re: keraflex

Postby Marctec » Wed 20 Jul 2011 7:47 pm

Hope this will be like you say...

Ah, I forget to to explain that I was advertised of risks, and of course all the time the UK clinic was 100% for me, and very helpful all the time. All nurses and the optician are very professional. Any doubt for this.
I'm only explaining my result.

jhon
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Keratoconus: Yes, I have KC
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Re: keraflex

Postby jhon » Wed 20 Jul 2011 8:36 pm

can you tell me what the risks of keraflex operation

liam82
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Keratoconus: Yes, I have KC
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Re: keraflex

Postby liam82 » Sun 24 Jul 2011 9:08 pm

cummingsab wrote:It has been brought to my attention that there is some confusion with regards the Keraflex procedure being available at the Wellington Eye Clinic. The response that follows hopefully clarifies matters for all concerned: the WEC collaborates with the CEO and the research team at Avedro , offering Keraflex and KXL (accelerated cross linking) as part of the company’s advanced clinical experience program and not as a commercial clinic. We offer Keraflex treatments on a regular basis at the WEC. Sincerely, Dr. Arthur Cummings


Thanks for that.

Apologies if im being daft here, but im abit more confused! So the WEC does offer keraflex, but not commercially? Does that mean its through trials with avedro?
Or can people just book appointments for it?

Sorry for the misunderstanding on my part!

cummingsab
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Keratoconus: No, I don't suffer from KC
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Re: keraflex

Postby cummingsab » Wed 27 Jul 2011 9:28 pm

Reading it again, I can see why you are confused. My apologies.
Yes, the Wellington Eye Clinic does offer Keraflex and corneal cross-linking. You can simply book an appointment for a CXL evaluation and we will tell you your best option: RGP CL's, CXL alone, KXL (Accelerated CXL), SimLC, Intacs or Keraflex. We have every treatment modality available and will recommend whichever treatment is best suited to your specific situation.

gshr
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Re: keraflex

Postby gshr » Sun 31 Jul 2011 11:07 pm

Dear Dr Cummings,

Really sorry. Maybe unable to understand this but please clarify. Avedro very recently 100% confirmed that you have not purcahsed the machine (?). Can you confirm that you have the machine in your clinic for use that you have purcahsed and it is not simply given to you as a trial when needed. Its causing alot of confusion. Why have avedro told me you do not have one and only direct me to 2 other companies in europe.

Sorry to be picky but this is really confusing.

amin3131
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Re: keraflex

Postby amin3131 » Wed 03 Aug 2011 3:09 pm

hi i have KC and 2 years ago i do cxl --now i can do keraflex ?cuz after keraflex i must do cxl it meaning 2 cxl for me
sorry my firends i cant sepeak good english

liam82
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Keratoconus: Yes, I have KC
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Re: keraflex

Postby liam82 » Thu 04 Aug 2011 2:17 pm

cummingsab wrote:Reading it again, I can see why you are confused. My apologies.
Yes, the Wellington Eye Clinic does offer Keraflex and corneal cross-linking. You can simply book an appointment for a CXL evaluation and we will tell you your best option: RGP CL's, CXL alone, KXL (Accelerated CXL), SimLC, Intacs or Keraflex. We have every treatment modality available and will recommend whichever treatment is best suited to your specific situation.



Aha, that makes perfect sense now. Fantastic, thanks for the info, and for clearing it up- really appreciate it mate :)


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