Hello all!

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

User avatar
Brooksy789
Newbie
Newbie
Posts: 9
Joined: Wed 04 May 2011 10:07 pm
Keratoconus: Yes, I have KC
Vision: On the waiting list for a graft

Hello all!

Postby Brooksy789 » Thu 05 May 2011 12:34 pm

Hello all just joined the forum. was pointed here by ian (GrandPaClanger) and i must say ive found alot of information on here very helpful.

I myself am a Keratoconus sufferer and have been now for about 2 and a half years. Im curently wearing RGP scaleral lenses but im on the waiting list for a graft in my left eye because of how quick it has deteriated!

Hope to speak to you all alot more soon and read alot more great informatikn.

Matt

GrandPaClanger
Moderator
Moderator
Posts: 236
Joined: Sat 27 Mar 2010 9:05 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: Hello all!

Postby GrandPaClanger » Thu 05 May 2011 12:52 pm

Welcome aboard mate. Glad you found it useful.

User avatar
Anne Klepacz
Committee
Committee
Posts: 2294
Joined: Sat 20 Mar 2004 5:46 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: Hello all!

Postby Anne Klepacz » Thu 05 May 2011 12:54 pm

Hi Matt and welcome. We've currently got a thread on the forum about waiting times for grafts so can I ask how long you've been told your wait is likely to be?
Anne

User avatar
Brooksy789
Newbie
Newbie
Posts: 9
Joined: Wed 04 May 2011 10:07 pm
Keratoconus: Yes, I have KC
Vision: On the waiting list for a graft

Re: Hello all!

Postby Brooksy789 » Thu 05 May 2011 3:49 pm

As it stands at the moment ive been on the waiting list since the 24th December and they told me the wait would be anywhere between 4 and 8 months. Im under Proffessor Dua at the Queens Medical Centre in Nottingham if anyone else has had a graft there or even by the same person?

Matt

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: Hello all!

Postby Andrew MacLean » Thu 05 May 2011 6:06 pm

Matt, I am afraid that I am in Glasgow, so can't help you there. Nonetheless, welcome to the forum.

Andrew
Andrew MacLean

Accuvision Optom
Optometrist
Optometrist
Posts: 12
Joined: Wed 13 Jan 2010 3:05 pm
Keratoconus: No, I don't suffer from KC
Vision: Other

Re: Hello all!

Postby Accuvision Optom » Thu 12 May 2011 1:00 pm

Hi Matt,

Have you considered or discussed the possibility of Corneal Collagen Cross-Linking yet?

It may well be that the KC has progressed so far that a graft is the only option but it is worth finding out if there are any alternatives first.
Even if it is too late to cross-link your weakest eye, it may be appropriate to consider cross-linking treatment for your stronger eye to try and
prevent it deteriorating further.

Kind regards

Anthony


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