CXL no longer available on NHS!?

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BurnTheAction
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Keratoconus: Yes, I have KC
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CXL no longer available on NHS!?

Postby BurnTheAction » Wed 22 Sep 2010 2:38 pm

Had a proper follow-up appointment at the corneal clinic to my cxl carried out at Moorfields in May (first follow up was with a retina specialist, admin error!)

I was informed that CXL is no longer available on the NHS and that i had mine done just before this decision was made! I understand that long term results arent conclusive but surely this is also a financial issue?

GrandPaClanger
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Keratoconus: Yes, I have KC
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Re: CXL no longer available on NHS!?

Postby GrandPaClanger » Wed 22 Sep 2010 8:14 pm

No doubt. If true NICE will have something to do with it.

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Anne Klepacz
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Keratoconus: Yes, I have KC
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Re: CXL no longer available on NHS!?

Postby Anne Klepacz » Thu 23 Sep 2010 9:26 am

Well, the guidelines on CXL issued by NICE last year haven't changed www.nice.org.uk/IPG320 and I can't find anything else on the NICE website to suggest that there's any new guidance. And I think there are one or two other hospitals in the UK that are doing CXL for a few patients on the NHS. So it would be interesting to know whether the Moorfields decision is based on clinical or financial considerations. Perhaps someone will tell us!
Anne


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