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General forum for the UK Keratoconus and self-help group members.

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Moderators: Anne Klepacz, John Smith, Sweet

stevesharpe
Newbie
Newbie
Posts: 1
Joined: Thu 20 May 2010 9:17 pm
Keratoconus: Yes, I have KC
Vision: Spectacles

New here

Postby stevesharpe » Thu 20 May 2010 9:21 pm

Hi all,

Just introducing myself.

Not long been diagnosed with a keratoconus in my right eye. I'm only 22 so it's not too serious yet although without contacts it is pretty blurred! I just got my contacts on Saturday, RGPs, so hopefully they should improve things - having a pretty miserable time getting them to stay in. May have to go back this Saturday for advice. Pretty sure I'm doing it wrong - they always go in off-center, and seem to pop out on recentering.

Anyway I'm a Computing student from Kent. Nice to meet you all. :)

Steve

User avatar
Anne Klepacz
Committee
Committee
Posts: 2293
Joined: Sat 20 Mar 2004 5:46 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: New here

Postby Anne Klepacz » Fri 21 May 2010 9:25 am

Hi Steve and welcome to the forum!
It takes most of us a few weeks to get used to contact lenses, building the wearing time up gradually. But keratoconic eyes aren't easy to fit, and optometrists don't always get it right first time. So if they do continue popping out, do go back and get the fit checked out (and your technique for getting them in and out). I'm sure you'll get there in the end - the fact that you can see so much better when they're in is always a big motivator!
And if you'd like to join our postal mailing list for newsletters, the KC information booklet and DVDs of our conferences, just drop me an e-mail at anne@keratoconus-group.org.uk
Best of luck,
Anne

GrandPaClanger
Moderator
Moderator
Posts: 236
Joined: Sat 27 Mar 2010 9:05 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: New here

Postby GrandPaClanger » Fri 21 May 2010 12:31 pm

Welcome Steve. As Ann says it's worth getting the fit checked . Even with a good fit they may go off centre or pop out if you are unlucky. After a period of time you get to know what you can get away with. I now turn my head to look at something off to the side rather than moving just my eye balls.

Best of luck

Ian

User avatar
Libby
Regular contributor
Regular contributor
Posts: 103
Joined: Wed 27 Dec 2006 8:23 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: Derbyshire

Re: New here

Postby Libby » Fri 21 May 2010 6:09 pm

Hi Steve

I can remember when I first had contact lenses over 25 years ago - was a complete nightmare - but I ave to say things ave moved on sooo much now and the optometrists are brilliant.

All I can say is preserve - they do take a while to get used to but in the long run it will be worth while.

Wishing you well

Libby

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electricheadx
Regular contributor
Regular contributor
Posts: 63
Joined: Fri 29 Jan 2010 12:54 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses
Contact:

Re: New here

Postby electricheadx » Fri 21 May 2010 11:23 pm

Hi Steve

Getting the right fit with a lens can be a bit tricky. I had to change my lens after cross linking, I am now waiting on the 3rd lens. Hopefully 3 the charm and it fits ok :)
You will get use to putting them in quickly enough. To stop my lens going in off center, Once the the lens is just close to my eye i look directly at it rather than look at what i'm doing in the mirror.
Hope this helps you.

Rgds
Denis

BurnTheAction
Regular contributor
Regular contributor
Posts: 55
Joined: Mon 04 Aug 2008 8:37 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses

Re: New here

Postby BurnTheAction » Thu 03 Jun 2010 11:34 am

Alrite mate, im 24, first diagnosed around 19ish at the end of my first year of Uni so similar situation (though i had RGPs for both eyes)

I'll never forget putting them in for the first time and staring in wonder at how gross my student houses carpet was!

They are tricky to start, i found i had to get my eyes at a certain angle for them to feel comfortable and stay for the first week or so of slow buildup wear, used to play pro evo slouched in a beanbag at just the right angle so i could see comfortably! Had two years with no problems at uni which was nice, not so good thesedays but thats for another time, good luck with it!

clare f
Contributor
Contributor
Posts: 20
Joined: Mon 05 Feb 2007 8:10 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: Cheshire/Shropshire

Re: New here

Postby clare f » Sat 05 Jun 2010 10:05 pm

Steve! dont fear it does get easier, to be fair I think I was lucky I was diagnosed at 12-13 so my consultant put mine in and I literally just had to sit there in the chair for 30mins or so then he would take them out again for me, then I built up and did it myself- its just a trial and error type of thing. Though you could need to be refitted, if they pop-out. Im now 21, and can say sometimes I still have problems putting mine in and taking them out, but just keep trying. good luck with your university!

Clare


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