what now

General forum for the UK Keratoconus and self-help group members.

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Moderators: Anne Klepacz, John Smith, Sweet

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matt28
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Posts: 35
Joined: Thu 29 Jan 2009 9:36 pm
Keratoconus: Yes, I have KC

what now

Postby matt28 » Thu 04 Mar 2010 8:34 pm

after seeing my nhs optician recently they gave me the impression they have run out of ideas with regards to my KC...i personally think its due to them being a very small department and having there hands tied with regards to budgets , not that it helps me in my quest to see and try and live a normal life...the only options i have ever been offered is rose k( ok for the first few years) and now a "nlk" lens..and thats it despite myself being able to find loads of different types of lenses for KC via google!!...every time i say to my specialist that the lens isnt right they turn around and tell me "well it looks like a good fit" as if im not going to know any difference despite being the one who has to wear it everyday.. :?

any ideas?! :lol:

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Hill85
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Posts: 9
Joined: Sat 27 Feb 2010 9:40 pm
Keratoconus: Yes, I have KC
Vision: I have Intacs implanted
Location: Boston, Massachusetts

Re: what now

Postby Hill85 » Thu 04 Mar 2010 8:49 pm

It seems that the Kerasoft IC lens by Ultravison is becoming very popular. Its not avalible in the US. but check your avalibility.

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Anne Klepacz
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Posts: 2293
Joined: Sat 20 Mar 2004 5:46 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: what now

Postby Anne Klepacz » Fri 05 Mar 2010 10:56 am

Hi Matt
I don't know if you're on our mailing list, but we've just sent out a newsletter to all our mailing list members which included a very good article on all the different lens options available. If you haven't had this, do e-mail your postal address to anne@keratoconus-group.org.uk and I'll send you a copy.
And if you think the problem is that you go to a very small eye dept, you could ask your GP to refer you to a bigger hospital with a contact lens department where you might be given more options.
All the best
Anne

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Andrew MacLean
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Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: what now

Postby Andrew MacLean » Sat 06 Mar 2010 5:59 pm

Matt

If you are being seen by a small hospital clinic, why not ask for a referral to a larger regional centre.

Of course, it may be that there are clinical indicators that limit the choice of lens for your particular case, but you are entitled to a second opinion.

Andrew
Andrew MacLean


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