Is any help available?

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

User avatar
rosemary johnson
Champion
Champion
Posts: 1478
Joined: Tue 19 Oct 2004 8:42 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: East London, UK

Re: Is any help available?

Postby rosemary johnson » Fri 10 Oct 2008 10:23 pm

Hmmm, I seem to recall from things posted on this form efore that you are far fromt he irst person here to be mourning the retirement of Keith Nelson.
ANd if cost and time were no issue, that would be me too, I'm sure, as I'd have been commuting back to Render Layfield to sort my lenses out for many years....
I don't have an answer - other than to think there must be someone in the area who does sclerals and doesn't have the Wrexham bureaucracy to cope with. Unfortunately, NHS "system" slowness and impenetrability can be amazingly cloying at times. It is the difference between the private practice clinic, maybe sbcontracted to provide NHS services, and the in-hospital clinic. There's no cmpetition at all as to which I'd prefer!
On finances - and maybe you've done this already - is there anything like a SOciety of the Blind or Association of disabled people near where you live, that you could ask for advice, or even who might know of charitable funds that might have grants (or even loans) to apply for? - or are you a member of anyting like a professional association that might have such a thing?
- it occurred to me that it is the sort of thing the trade union hardship funds were for.... though being self-employed you're probably not a union member.
Continue wishes of loadsa good luck, nayway.
Rosemary

liphook
Newbie
Newbie
Posts: 7
Joined: Wed 14 Jul 2004 2:26 pm

Re: Is any help available?

Postby liphook » Mon 13 Oct 2008 3:45 pm

Just had letter from hospital regarding my appointment to see lens specialist this month...they have very kindly cancelled this one and made another appointment in November, so thats a whole 5 months since last saw them.......dont you just love NHS bureaucracy.

I have contacted Liverpool, where i see consultants, and asked if they can refer me......gotta be someone better near here surely!

User avatar
rosemary johnson
Champion
Champion
Posts: 1478
Joined: Tue 19 Oct 2004 8:42 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: East London, UK

Re: Is any help available?

Postby rosemary johnson » Mon 13 Oct 2008 8:44 pm

Hi again.
Gotta be something beter, surely - I agree. And hope so, indeed.
Good luck - hope St Paul's can come up with what you need.
Rosemary


Return to “General Discussion Forum”

Who is online

Users browsing this forum: No registered users and 61 guests