Gareth said his clinic only measure his IOP (intra-ocular pressure) if there's a problem:
errrm 'scuse me asking, but if they don't measure it, how do they know it is a problem (or not)?
No, seriously....... they measure mine every appointment because my graft is fairly recent. How long they will go on doing so, assuming all is (will be) going well, I don't know.
The guy I saw at the first 2 post-op check ups (next day and a week later) just told me to look down, felt my upper eyelid with his thumb and said, "Hmm, that feels like a 15." No machines or gadgets..... everyone since has used one of the secial gadgets.
The A&E people all seemed to think that, so long as it reacted to the drops and the pressure came down, then it was doing fine and the problem was nipped in the bud, as it were, before it got a big bloomer.
Hope yours sorts itself out soon.
Rosemary
Corneal Graft
Moderators: Anne Klepacz, John Smith, Sweet
- rosemary johnson
- Champion
- Posts: 1478
- Joined: Tue 19 Oct 2004 8:42 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: East London, UK
- GarethB
- Ambassador
- Posts: 4916
- Joined: Sat 21 Aug 2004 3:31 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: Warwickshire
Re: Corneal Graft
Rosemary,
Last time I went was a month ago and my eyes were really painful. They could see absolutly nothing wrong so measure the eye pressure.
I have never had a problem with my consultants and I trust them implicitly that they have the skill to see if there is a problem without having to measure pressure all the time.
Last time I went was a month ago and my eyes were really painful. They could see absolutly nothing wrong so measure the eye pressure.
I have never had a problem with my consultants and I trust them implicitly that they have the skill to see if there is a problem without having to measure pressure all the time.
Gareth
- pepepepe
- Regular contributor
- Posts: 137
- Joined: Sat 16 Aug 2008 12:13 pm
- Keratoconus: Yes, I have KC
Re: Corneal Graft
Hello Gareth,
From reading your posts i wanted to ask if yours still wearing the Kerasoft 3's ? and what happened about your glasses, you was doing well in them and you was going to power up one lens or something like that, to be able to drive in races, when you was wearing Rgp's before ?
Pepe
From reading your posts i wanted to ask if yours still wearing the Kerasoft 3's ? and what happened about your glasses, you was doing well in them and you was going to power up one lens or something like that, to be able to drive in races, when you was wearing Rgp's before ?
Pepe
- GarethB
- Ambassador
- Posts: 4916
- Joined: Sat 21 Aug 2004 3:31 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: Warwickshire
Re: Corneal Graft
Glasses just can't boost and the distortion in the right eye is so bad I was just getting physically sick like motion sickness so those are for short term use only.
K3's dropped off the radar for a while due to work and health but hope to have another improved version, a slight variation I think on the K3 as the manufacturer is continually looing at improviong their product. I hope to have those by the end of the month.
Since what appears to have been an allergic reaction to RGP's i have been using a K3 in the left eye but only getting a max of 6 hours which varies between 6/6 and 6/9 then goes suddenly. With an RGP in the left eye i can only manage a couple of hours. Right seems about fully recoverd.
With the test K3 fitting I was getting 6/5 in both eyes so gingers crossed when the lenses arrive this will still be the case. Down side is the lenses arrive at a similar time my new RGP's arrive from the hospital. They are seeing if they can reduce the amount the lens touches my eye.
Second problem is that once I have decided which lens I am trying, the first two weeks of October I am on jury service, then a week to wind everything up at work, week holiday and then start a new job. Same company just different part.
K3's dropped off the radar for a while due to work and health but hope to have another improved version, a slight variation I think on the K3 as the manufacturer is continually looing at improviong their product. I hope to have those by the end of the month.
Since what appears to have been an allergic reaction to RGP's i have been using a K3 in the left eye but only getting a max of 6 hours which varies between 6/6 and 6/9 then goes suddenly. With an RGP in the left eye i can only manage a couple of hours. Right seems about fully recoverd.
With the test K3 fitting I was getting 6/5 in both eyes so gingers crossed when the lenses arrive this will still be the case. Down side is the lenses arrive at a similar time my new RGP's arrive from the hospital. They are seeing if they can reduce the amount the lens touches my eye.
Second problem is that once I have decided which lens I am trying, the first two weeks of October I am on jury service, then a week to wind everything up at work, week holiday and then start a new job. Same company just different part.
Gareth
- Andrew MacLean
- Moderator
- Posts: 7703
- Joined: Thu 15 Jan 2004 8:01 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Scotland
Re: Corneal Graft
Jury Duty then new job? Sounds like a stressful month ahead. Take care, Gareth.
Andrew
Andrew
Andrew MacLean
- pepepepe
- Regular contributor
- Posts: 137
- Joined: Sat 16 Aug 2008 12:13 pm
- Keratoconus: Yes, I have KC
Re: Corneal Graft
I hope you every success Gareth, I know what you mean about the "motion sickness" (yuck!), and bad corrected vision, Its suprising how quickly the feelings of being sick can come once looking through a pair of glasses not doing the trick. I'm ok with the "sickness" uncorrected though, however there may be an underline level going on due to the bad vision somewhat.
Pepe
Pepe
- GarethB
- Ambassador
- Posts: 4916
- Joined: Sat 21 Aug 2004 3:31 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: Warwickshire
Re: Corneal Graft
Proper corrected vision everything is fine as expected.
Uncorrected I may see multiple images but there is no distortion lsuch as images stretching and twisting which only happens on the right side because that has the biggest KC problem.
Everything has been thoroughly investigated and it is only with glasses there is any sickness problem.
Uncorrected I may see multiple images but there is no distortion lsuch as images stretching and twisting which only happens on the right side because that has the biggest KC problem.
Everything has been thoroughly investigated and it is only with glasses there is any sickness problem.
Gareth
- Andrew MacLean
- Moderator
- Posts: 7703
- Joined: Thu 15 Jan 2004 8:01 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Scotland
Re: Corneal Graft
I am currently wearing a lens on my left eye and glasses for my right eye. This is proving quite hard to get used to! Like Gareth, I do experience some nausea (kind of sea-sickness) during the first half hour or so of having both eyes with corrected vision.
Andrew
Andrew
Andrew MacLean
Re: Corneal Graft
Thank you all your comments....
Had my second follow upa couple of weeks ago and the pressure was a tad higher than before. As a result the consultant called over a Glaucoma specialist and and they put me on Iopidine and Lumigan as additional drops to take for the next two weeks. Told to me stop with the xalyatan though.
Two weeks gone and was at Moorfields yesterday.......crossed every part of my body (not a pretty sight, beleive me) IOP 38...OMG good, was thinking what wrong with me.
To cut this story short, John (John Brookes, Glaucoma Specialist) didnt think further prolonged use of teh drops would help reduce the IOP down and further than usual. So have a day booked for surgery........Relly not looking forward to this.
They are going to insert a tube in the back of the eye (see details below)
Drainage Tubes
In some cases, a special drainage tube has to be inserted into the eye to drain fluid out. In certain cases the tube works better than a trabeculectomy and can stay in for an indefinite time. A special stitch is inserted in the tube to prevent the pressure from dropping too low. This stitch can be removed after a few months if the pressure stays too high.
Have also check out my Corporate med insurance and am covered so likely to have the op on Hallowen night.
Had my second follow upa couple of weeks ago and the pressure was a tad higher than before. As a result the consultant called over a Glaucoma specialist and and they put me on Iopidine and Lumigan as additional drops to take for the next two weeks. Told to me stop with the xalyatan though.
Two weeks gone and was at Moorfields yesterday.......crossed every part of my body (not a pretty sight, beleive me) IOP 38...OMG good, was thinking what wrong with me.
To cut this story short, John (John Brookes, Glaucoma Specialist) didnt think further prolonged use of teh drops would help reduce the IOP down and further than usual. So have a day booked for surgery........Relly not looking forward to this.
They are going to insert a tube in the back of the eye (see details below)
Drainage Tubes
In some cases, a special drainage tube has to be inserted into the eye to drain fluid out. In certain cases the tube works better than a trabeculectomy and can stay in for an indefinite time. A special stitch is inserted in the tube to prevent the pressure from dropping too low. This stitch can be removed after a few months if the pressure stays too high.
Have also check out my Corporate med insurance and am covered so likely to have the op on Hallowen night.
- rosemary johnson
- Champion
- Posts: 1478
- Joined: Tue 19 Oct 2004 8:42 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: East London, UK
Re: Corneal Graft
OMG indeed, Dipesh!
I think you are in good hands, at least.
I hope the lumigan and iopidine do the trick (that's what I'm on too).
If this isn't a silly question, where does the tube go from and to ? - into the sinuses, and then the excess fluid come sdown your nose??
(I presume it does not stick out of the face with a little to cork to bung in to keep the dust out, like a "tubed" horse?!!!!
DO you know if this is one of the ops they can do under local, or one they claim they can't?
Good luck, and do let us know how you get on.
(My IOP was 36 when I first went to A&E and they found it was the problem. DOwn to 25 when last measured on Lumigan/Iopidine, but red, dry and sandy. Apparently 25 not to be panicked over and will be monitored, but when someone says something about Wanting To Avoid Another Operation, well, don;t like to think it may be on the horizon._
Rosemary
I think you are in good hands, at least.
I hope the lumigan and iopidine do the trick (that's what I'm on too).
If this isn't a silly question, where does the tube go from and to ? - into the sinuses, and then the excess fluid come sdown your nose??
(I presume it does not stick out of the face with a little to cork to bung in to keep the dust out, like a "tubed" horse?!!!!
DO you know if this is one of the ops they can do under local, or one they claim they can't?
Good luck, and do let us know how you get on.
(My IOP was 36 when I first went to A&E and they found it was the problem. DOwn to 25 when last measured on Lumigan/Iopidine, but red, dry and sandy. Apparently 25 not to be panicked over and will be monitored, but when someone says something about Wanting To Avoid Another Operation, well, don;t like to think it may be on the horizon._
Rosemary
Return to “General Discussion Forum”
Who is online
Users browsing this forum: No registered users and 28 guests