(Intacs) Excellent experience at The Centre for Sight

General forum for the UK Keratoconus and self-help group members.

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GarethB
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Postby GarethB » Mon 30 Apr 2007 8:48 am

dplees,

Not had intacs but often wear one lens at a time so see much the same as you when you have one intac removed.

It only took me a week or so to get used to seeing with one eye. Initially your dpeth perception goes, but the brain soon learns how to compensate for most things. At least it did for me.
Gareth

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Louise Berridge
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Postby Louise Berridge » Mon 30 Apr 2007 9:01 am

So do the 'centre for sight' recommends 2 INTACS?
I wanted 1, I read that better results are achieved with 1 INTAC, but I was given 2.

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dplees
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Postby dplees » Mon 30 Apr 2007 10:27 am

No, they only used 1.
How is the C3-R? Was it painful? How soon after you had it could you return to work?

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Louise Berridge
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Postby Louise Berridge » Mon 30 Apr 2007 10:35 am

The C3R stung more afterwards, but virtually all pain had gone the next morning. I was signed off for a week, but could have gone back after a day or 2.

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Louise Berridge
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Postby Louise Berridge » Tue 01 May 2007 7:32 am

Hi,
My eye suddenly seems to have improved. Can just about read a number plate now and the sensation of feeling the INTACS seems to have eased.
Are you going to have C3R? I am trying to find out if it would be safe to have it done on my other eye, which is OK at the moment. As I know it probably will occur in my good eye at some stage, the C3R could prevent it. The only concern I have is whether it would change my currently good vision, in anyway. I know some on this forum have had it done as a preventative measure, but others have warned it might be best to leave it alone. Any ideas?

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dplees
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Postby dplees » Tue 01 May 2007 11:23 am

I was thinking of c3-r but this put me off a bit

http://www.keratoconus.com/c3rtx.html

It would be nice to have it and to never have to think about keratoconus again

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jayuk
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Postby jayuk » Tue 01 May 2007 11:26 am

Dplees

Why has it put you off; based on that?

J
KC is about facing the challenges it creates rather than accepting the problems it generates -
(C) Copyright 2005 KP

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Andrew MacLean
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Postby Andrew MacLean » Tue 01 May 2007 11:28 am

dplees

I guess this is one reason why we have systems to control experimental procedures in all jusisdictions.

Actually I have never put much store by claims that this therapy or that will halt or reverse Keratoconus: they all seem to be more-or-less well tried methods of KC management. Some do well; others leave a lot to be desired.

Andrew
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Louise Berridge
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Postby Louise Berridge » Tue 01 May 2007 11:36 am

That's the first bad response I've heard to C3R. While there is no long term research into the effects, I think I am correct in saying that, none of the patients in Europe, or the U.S. who have had the treatment, have required a graft and progression has been stopped, to date. I'm 34 and the KC progression in my eye was rapid and I really had to take action. A near perfect eye went from 6/6 to 6/40 in 2 months. I had C3R in November (6 months ago) and it seems to have stabilised. (Touch wood). With no other alternatives for halting KC, I wouldn't think twice about having it done again, even though the long term risk to the retina may be a possibility.

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Andrew MacLean
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Postby Andrew MacLean » Tue 01 May 2007 11:41 am

I think you are wrong: Jay had C3R and a subsequent graft. but this does not mean that C3R has failed; he may have needed the graft much earlier if he had not gone throught the C3R procedure.

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