Hi Craig...
Good to see you coming to terms with things! I understand you wanting to think about long term.
The thing about KC is that it makes clear vision with glasses difficult and sometimes contact lens fitting also because of the changes to the corneal shape. Both intacs and C3R aim to help this by "normalising" the shape of the cornea. Neither are a cure and certainly long term effects of C3R are not really known as it hasn't been out long enough! Intacs can be taken out if they cause problems but you can't "undo" C3R.
You are in the early stages right now and research is ongoing so it is likely new treatments will be coming along if you ever get to the stage that you need to consider them.
It is VERY difficult trying to get people to understand something they cannot see and Gareth's explanation is as good as any!!
Lynn
Newly Diagnosed
Moderators: Anne Klepacz, John Smith, Sweet
Thanks for all the coments and support.
I had my contact lens fitting thingy today and it was hell. I have a strong phobia of people touching my eye. I'm not exactly comfortable with touching my eye myself put someone else is a complete different story lol. Thankfuly the optician was very understanding and remained very calm. To cut a long story short, after loads of panicing he got the lens in and it felt terrible. Looking back i think it was just the sensation of something on my eye being multiplied because of my huge panic. But i am so determined to push through my irrational fear. He let me see through a pinhole lens to kind of simulate similar results to having contacts which work well in and i was really taken aback by the dramatic improvement in my vision, i could read about three more lines!!! But i couldn't take anymore today as i was shaking like mad and my breathing was irratic. So i have another appointment for next Thursday and shall be practicing touching my eye to get used to the sensation. I'm so determined to get through this. Also, he was telling me about a new lens that he's just ordered for one of his patients which is a hard lens which is coated with a soft lens all the way around. He said he has used them before with poor results, they kept cracking aparently, but these new ones are meant to be much better. Anyone heard of them?
I had my contact lens fitting thingy today and it was hell. I have a strong phobia of people touching my eye. I'm not exactly comfortable with touching my eye myself put someone else is a complete different story lol. Thankfuly the optician was very understanding and remained very calm. To cut a long story short, after loads of panicing he got the lens in and it felt terrible. Looking back i think it was just the sensation of something on my eye being multiplied because of my huge panic. But i am so determined to push through my irrational fear. He let me see through a pinhole lens to kind of simulate similar results to having contacts which work well in and i was really taken aback by the dramatic improvement in my vision, i could read about three more lines!!! But i couldn't take anymore today as i was shaking like mad and my breathing was irratic. So i have another appointment for next Thursday and shall be practicing touching my eye to get used to the sensation. I'm so determined to get through this. Also, he was telling me about a new lens that he's just ordered for one of his patients which is a hard lens which is coated with a soft lens all the way around. He said he has used them before with poor results, they kept cracking aparently, but these new ones are meant to be much better. Anyone heard of them?
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Andrew MacLean
- Moderator
- Posts: 7703
- Joined: Thu 15 Jan 2004 8:01 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Scotland
Craig
My first contact lens fitting was made less traumatic by the fact that nobody put a lens into my eye: I was encouraged and talked through the procedure so that I did it all myself.
Still, with that trauma behind you, I hope that the lenses do work for you for as long and as well as they did for me.
Andrew
My first contact lens fitting was made less traumatic by the fact that nobody put a lens into my eye: I was encouraged and talked through the procedure so that I did it all myself.
Still, with that trauma behind you, I hope that the lenses do work for you for as long and as well as they did for me.
Andrew
Andrew MacLean
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Pat A
- Forum Stalwart
- Posts: 661
- Joined: Fri 08 Dec 2006 9:42 pm
- Keratoconus: No, I don't suffer from KC
- Vision: Contact lenses
- Location: Herts
Craig
I used to be like you - almost phobic about people - including me - touching my eyes, probably as a result of 2 eye operations as a child.
But I have managed to get over this, at least for myself really by persevering with soft contact lenses originally. It wasn't easy, but when you use soft lenses you are not really touching the eye - the lens is. I still don't like anyone else touching my eyes - so by doing it myself, bit like Andrew says, it does get easier.
But I really struggled to remove my RGP lens - so now I've got one of those little plunger things - it's great! (But i don't think the optoms like them very much - not sure why?)
Hang on in there - you'll get there in the end.
I used to be like you - almost phobic about people - including me - touching my eyes, probably as a result of 2 eye operations as a child.
But I have managed to get over this, at least for myself really by persevering with soft contact lenses originally. It wasn't easy, but when you use soft lenses you are not really touching the eye - the lens is. I still don't like anyone else touching my eyes - so by doing it myself, bit like Andrew says, it does get easier.
But I really struggled to remove my RGP lens - so now I've got one of those little plunger things - it's great! (But i don't think the optoms like them very much - not sure why?)
Hang on in there - you'll get there in the end.
Pat
We do not stop playing because we grow old;
We grow old because we stop playing.
We do not stop playing because we grow old;
We grow old because we stop playing.
Hi Craig,
This does ring bells, more for some than others. If you shut your eyes so tightly when something goes anywhere near your eye's... its because you have great reflex's!! (flight not fright sort of thing
)
And from reading your other post's, I would say that the "bench mark" in this country is the glory-ious NHS for any surgery your thinking off. If they, the NHS (somewhere) don't do it, then there must be a valid reason for it. As at the end of the day they want you get you sorted as perminatly as possible so that their resouces don't get drained with more and more repeat visits.
However in other countries some of these new treatments are "routine", only because they have more experiance with them.
This does ring bells, more for some than others. If you shut your eyes so tightly when something goes anywhere near your eye's... its because you have great reflex's!! (flight not fright sort of thing
)
And from reading your other post's, I would say that the "bench mark" in this country is the glory-ious NHS for any surgery your thinking off. If they, the NHS (somewhere) don't do it, then there must be a valid reason for it. As at the end of the day they want you get you sorted as perminatly as possible so that their resouces don't get drained with more and more repeat visits.
However in other countries some of these new treatments are "routine", only because they have more experiance with them.
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