please share that with me...........

[eman samir]

I would like to get to know a little bit more about everyone.PLEASE SHARE ME THAT WITH ME.
Hope nobody minds.

Name:
Age:
General Location:
How long since you were diganosed?:
Which eye is your bad eye?:
Have you had surgery?:
Hardest thing for you about living with KC?;

[John Smith]

Name: John Smith
Age: 41
General Location: SE London
How long since you were diganosed?: About 15 years
Which eye is your bad eye?: Hard to say now; originally my right.
Have you had surgery?: Yes, in both eyes
Hardest thing for you about living with KC? Explaining it to everyone

[Andrew MacLean]

I am 57 and have had KC all my adult life. Yes, I have had surgery in both eyes.

The worst bit about KC for me is that I do not know that the sight I have today will still be with me tomorrow.

The best thing is that with help and support I can live a normal and richly fulfilling life.

Andrew

[GarethB]

Name: Gareth Beynon
Age: 37 1/2

General Location: Warwickshire

How long since you were diganosed?: 21 years since first diagnosed, 2004 KC returned in right eye.

Which eye is your bad eye?: Right

Have you had surgery?: Right 1987; Left 1988

Hardest thing for you about living with KC?; Motorsport licence suspended eventhough I get perfect vision with lenses. Without lenses only thing I can not do is drive.

[Alison Fisher]

Name: Alison Fisher
Age: 44
General Location: Leicester, UK
How long since you were diagnosed?: Twenty six years.
Which eye is your bad eye?: Right now they're pretty much identical.
Have you had surgery?: Yes, on both eyes.
Hardest thing for you about living with KC?: Pre graft - coping with my lenses. Post graft - avoiding fluorescent and halogen lighting, both of which are very uncomfortable for me - and both of which seem to be everywhere I go! But on the bright side (no pun intended ) if that's the worst bit then I've nothing really to complain about have I?

[mike scott]

mike scott

age 40

location Manchester

diagnosed 22 yrs ago

worst eye left, impending transplant

worst thing about KC: coping with its unpredictability i;e when it stops me doing what i want from time to time.

best thing about KC: in some ways its made me a stronger person emotionally

[kerrie phillips]

Kerrie-louise phillips
30
married 3 children
lowestoft (near yarmouth/nowrich) east anglia
right eye worse
diagnosed aug 06
however existed alot earlier
Hardest thing for me is not being able to pass driving test because i cant read no plate, i have to rely on everybody else for lifts or hang around hours for buses

[Sarah M]

Name: Sarah
Age: 25
General Location: Aberdeen
How long since you were diganosed: 13 years
Which eye is your bad eye?: Right
Have you had surgery?: Yes
Hardest thing for you about living with KC?: Getting up early to put lens in - seriously - just always got on with it, but hardest thing at the moment is probably worrying about my good eye getting worse.

[debbieo]

Name: Debbie
Age: 39
General Location: Staines
How long since you were diganosed: 3 months, but know now that I've had it much longer
Which eye is your bad eye?: Right
Have you had surgery?: No
Hardest thing for you about living with KC?:
I'm very lucky it's really mild and I shouldn't complain. But I'm really hacked off that I couldn't have my eyes laser treated after saving up and psyching myself up for so long

[Pat A]

Name: Pat
Age: a little over 50
General Location: Hertfordshire
How long since you were diagnosed?: 4 months - but now understand I've probably had it for 25+ years in a milder form...
Which eye is your bad eye?: Left slightly worse than right but have lazy right eye
Have you had surgery?: Not for KC, but have had cataract surgery
Hardest thing for you about living with KC?; Not being able to work whilst awaiting diagnosis and subsequently waiting for lenses: Not being able to read, having to stop driving, and having to make big changes and adjustments to my life, late in life!