Keep up the Good Work

[Anonymous (Kirsty)]

You are always so encouraging and I get a lot of support when I read the messages. So thank you. Perhaps I ought to contribute more often.

I was diagnosed with KC nearly 3 years ago, following a routine eye examination. I was immediately referred to hospital and told that I needed contact lenses to get any quality vision.

I have a very friendly optician - but 3 years on - I still have not been given any lenses. I have tried numerous pairs - but nothing offers any quality vision. My sight with glasses is very poor and I am very sensitive to bright lights. I have tried numerous lenses for 3-week periods (each time building up my usage time)- but the vision is so poor,I take them back for new lenses.

I have tried all sorts of lenses - including Rose-Ks, but my pupils were too big and I had double vision. I also have very bad vision when I remove the lenses for a couple of hours afterwards (my optician says this is due to a high sensitivity to the oxygen levels dropping)

My optician is really nice - but I seem to be getting no- where fast! How quickly is everyone else fitted with their first lenses? I am sure I could put up with the discomfort if I could see properly. I am determined I am going to make this work.

KC is not stopping my life. I got married in October. I have a good job (and very understanding employers). I am out most nights doing youth work (although I am having to scut back now, as my eyes cannot handle the strain - my eyes are so sore and tired when I come in) - and generally I remain very positive about everything. But having to wait 6-8 weeks between new sets of lenses - then having to trial them for 3 weeks, just means it is a slow process.

Never having met anyone with KC - I have no idea if this is normal. And any tips on how to speed things up are very gratefully recieved!!! On a positive note - I have not had to pay a penny for any of the many lenses I have tried over the last 3 years!!!

Keep up the good work of inspiring us to carry on, when we go through low patches!!!

Thanks - Kirsty

[Anonymous (Sanjay)]

Kirsty, have you tried sclerel lenses? They have worked for me. I would suggest you contact Ken Pullum who specialises in these type of lenses.