Fed up

General forum for the UK Keratoconus and self-help group members.

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Moderators: Anne Klepacz, John Smith, Sweet

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Anne B
Champion
Champion
Posts: 754
Joined: Thu 15 Sep 2005 1:22 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Hertfordshire

Postby Anne B » Thu 06 Apr 2006 3:00 pm

Hi Jay

I'm still the same. Went to Moorfields in Feb because RGP lens was causing to much gohsting. They tried some more lenses and decided to try me with a soft perm lens. I havn't heard anything about this since. I have a appointment on the 27th April so i am guessing i will get them then.
When i was at Moorfields they started talking about grafts but i am soooo not ready for that. I contacted Ken Pullum so that i could try scleral lenses and have a appointment with him on 26th July at Moorfields. I am hopeing this will work out well.
Its a slow process and that gets frustrating.
So i still have the same old glasses and can only read to the second line of eye chart with them on. Still taking Cyclosporin and using FML and Opatanol eye drops.
Sorry to waffle. But you did ask!!

Anne

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Per
Chatterbox
Chatterbox
Posts: 207
Joined: Tue 11 Oct 2005 12:38 am

Re: Fed up

Postby Per » Thu 06 Apr 2006 3:56 pm

anne bishop wrote:Hi

I'm fed up .
Its the school holidays I've got three kids Eight, Four and Two I can't drive and my eye sight is bad enough to stop me from wanting to use public transport.
i really feel like i am letting my kids down. It makes me really sad.
Has anyone else been in this situation?

Anne


Hi, Anne.

When I was 14 years old I once crashed with the glass doors in a shop. Today I am able to see the comedy in that situation. But I can assure you I dindn t back then. It was some months before I got my first lenses. It was quite frustrating.


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