Search found 2125 matches

by Anne Klepacz
Mon 03 Jul 2023 10:01 am
Forum: General Discussion Forum
Topic: New information sheet
Replies: 0
Views: 20724

New information sheet

We have produced a new information sheet which can be downloaded from our homepage. This is addressed to parents of newly diagnosed children/young people and is a guide to the basic things you need to know at that stage, including links to more detailed information. See Information Sheet 5 here http...
by Anne Klepacz
Mon 19 Jun 2023 9:59 am
Forum: General Discussion Forum
Topic: DVLA and keratoconus
Replies: 2
Views: 2900

Re: DVLA and keratoconus

Many thanks for spotting this, Lia. It seems the change of heart has followed from an intervention by the Association of Optometrists https://www.aop.org.uk/our-voice/media-centre/press-releases/2023/06/16/dvla-publishes-revised-list-of-notifiable-conditions-list-for-drivers-following-aop-advice and...
by Anne Klepacz
Mon 03 Apr 2023 8:58 am
Forum: General Discussion Forum
Topic: For veteran corneal transplants
Replies: 2
Views: 1965

Re: For veteran corneal transplants

For contact lens checks, once a year is normal. For grafts, if all has gone well, there may not be any need for even annual checks. At Moorfields, the contact lens dept would refer back to the medics if they wanted a 'veteran' graft looked at.
by Anne Klepacz
Sat 25 Feb 2023 3:45 pm
Forum: General Discussion Forum
Topic: Better glasses for KC?
Replies: 4
Views: 7166

Better glasses for KC?

This research was delayed because of Covid, but these early results are encouraging.
https://www.keratoconus-group.org.uk/in ... ch-update/
by Anne Klepacz
Wed 22 Feb 2023 10:44 am
Forum: General Discussion Forum
Topic: Appreciation
Replies: 3
Views: 2684

Re: Appreciation

If you're not on our distribution list for KC Group newsletters, you'll find the latest one, with the articles Green refers to, here - https://www.keratoconus-group.org.uk/index.php/newsletters/ And don't forget our meetings in March (details on the home page events ticker) on 18th in London and on ...
by Anne Klepacz
Mon 23 Jan 2023 11:15 am
Forum: General Discussion Forum
Topic: Contact lens tolerance
Replies: 0
Views: 20709

Contact lens tolerance

At our Zoom 'coffee morning' last Saturday, we were joined by one of the principal optometrists at Moorfields. He told us about a new coating for some contact lenses which could help people having tolerance issues, particularly with scleral lenses. You can read more on our home page https://www.kera...
by Anne Klepacz
Thu 19 Jan 2023 4:29 pm
Forum: General Discussion Forum
Topic: The lives people lead..
Replies: 5
Views: 11735

Re: The lives people lead..

Welcome to the forum, Cameron. We've e-mailed when you were having difficulty registering, so I've already told you my story. But I hope other forum users will reassure you that, now most people diagnosed with KC have the option of CXL, the prospects really are very much brighter for this condition ...
by Anne Klepacz
Fri 13 Jan 2023 3:57 pm
Forum: General Discussion Forum
Topic: Zoom meeting
Replies: 0
Views: 20500

Zoom meeting

Would you like to talk to other people with keratoconus? People who actually know what you're talking about? Why not join us on Zoom next Saturday (21st)
https://www.keratoconus-group.org.uk/in ... g-on-zoom/
by Anne Klepacz
Mon 26 Dec 2022 2:57 pm
Forum: General Discussion Forum
Topic: Contact lens wear after CXL
Replies: 2
Views: 1617

Re: Contact lens wear after CXL

Hi Johnii, All the hospital information leaflets about CXL say it's OK to resume lens wear 2-6 weeks after the procedure. The Moorfields leaflet says this - "If you wear soft contact lenses, these should not be worn until you have finished the FML drops (i.e. after four weeks). If you wear hard...
by Anne Klepacz
Tue 15 Nov 2022 1:37 pm
Forum: General Discussion Forum
Topic: Keratoconus friendly opticians
Replies: 6
Views: 3145

Re: Keratoconus friendly opticians

Just to clarify. I've now checked with Sophie (apologies, should have done that before) and it's still only the Hove branch that specialises in fitting KC eyes with all types of lenses. Additional contact details are - Tel: 01273 567475 Email: info@sclerallenscentre.co.uk Website http://www.sclerall...

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