UK Keratoconus Self-Help and Support Association

Alastair

My advice would be dont take risks if you have to.

Only wear contact lenses when g;lasses fail to give you the vision you need especially if you have "dry eyes"

Maybe its worth you considering CXL treatment to stabilise the condition and prevent further progression.

Thanks for your informative reply Anne.

Anne, I note the title of the conference - "Keratoconus -positive progress" Can you supply any information on car parking, at or near the venue free/reasonable cost if possible. I note the program is identified as draft and there are two speakers in the morning and two in the afternoon but...

Anne I had a consultation with Mr Brahma yesterday at MREH. He mentioned the conference to me and indicated that the take up on tickets was low - how many people have booked to date? Will the event be professionally audio visually recorded and put on a dvd? These dvds could then be sold at a reasona...

Hi Pat, I am hoping to able to go as`I've never attended the past bi-annual KC conferences run by the group usually in London. Thats a remarkable financial and time commitment you are making to supporting the event. I hope that you find it worthwile. I live in North Lancashire about 75 miles away an...

Thanks Chris for your excellent response. You confirm what I suspected - why these lenses are not widely available on the NHS - cost/short life expectancy. Your point about training for the contact lens fitters concerning new lenses imo is a very valid point. Like all public sector services sadly it...

Harley Str consultants website quite informative concerning surgery options:- http://www.chadrostron.co.uk/index.htm PK graft:- http://www.chadrostron.co.uk/Keratoconus/PkKeratoconus.htm Because of the theoretical risk of disease transmission, corneal transplant recipients are no longer able to be b...

Are the kerasoft IC lenses available at all NHS Hospital contact lens clinics?

How long do they last?

How much are they to purchase (a) privately and (b) on the NHS

Thanks Lia and everyone for feedback.

If I do go ahead and have the op on the 11 June I'm hoping I'll still be able to attend the Groups conference in Manchester on the 15 June if possible - so maybe meet up there.

Anne Thanks for your comments. Can KC progress after a graft? Is there anywhere in the UK where you are going to get the opportunity of trying out all the different makes/types of lenses available? I suspect the NHS has a very limited range when it comes to contact lenses just like with NHS specs? O...