UK Keratoconus Self-Help and Support Association

hari, what a good post mate, your spot on with what your saying about professionals promoting different treatments for their own personal gain, also what you say about living with a transplant, if everybody who has had one for keratoconus was completely honest, i'm sure they would say they'd rather ...

Anyway i'll be away from a computer for next few days again so won't be bugging any of you, taking my dad to wembely to see "the who" I thought i owed it him for paying for me to go to the london vision clinic for last 10 months.
tom

andrew sorry if i was nasty just want c3r to be keratoconus's magic cure, anne we don't need the dvd put it on the website whats been tested for the longest the iroc version not the nhs's 1 where there puttin it too close to the eye eek.
tom

It's been tried and tested for 9 years andrew with no complications and you should have to back up your comments thats what i was told by the moderators when writing extreme posts which is what you are doing. They have found a treatment that directly affects the cause of keratoconus, i think this sh...

what are you on about andrew, the KC forum is supposed to help other KC'ers your miss advising them, collagen cross linking slows,stops, or even reverses keratoconus therefore stopping the need for people to have transplants maybe you've got an issue with c3r cause you've already had transplants and...

Just want to know every uk KC'ers opinions on what is the only treatment/cure solely for our disease, if your not sure what it is or haven't been told enough go to http://www.kcglobal.org they have reliable information on their website.
Please everybody who reads this vote.
tom

matthew yes some nhs hospitals are trialling it but they are putting the uv40 light less than 5cm away from the eye, which considering the reason many of us were told collagen cross linking isn't a viable technique seems very contradicting. go to kcglobal.org mate if you want more information.
tom

thanks Steven, maybe if all of the KC'ers were like you we'd be able too change things quicker, the collagen cross linking treatment needs to be implemented by the nhs now not in 5 - 10 years, what we all need to ask ourselves is the reasoning behind this treatment being held back, if keratoconus is...

http://www.kcfreedom.org/ yes some of the treatments talked about are not available on the nhs but this is something we as a group can change, and make thing better for future keracotonics, please for god's sakes open your eye's people i've been asking you for 10 months now maybe if you wont listen ...

heya steve, i think i know what your talking about with the record keeping (big untidy brown files fluttering around everywhere lol:roll:) There is a lot of documented stuff on the www tho but it's mostly said in maybe's or probably's. There does seem to be a big link with hormones which a few study...