UK Keratoconus Self-Help and Support Association

We must have had this debate over washing up liquid and proprietary brands of cleaners either on this forum, at meetings and in conversation at regular intervals over the last umpteen years. I guess the fact that it has surfaced again means it remains an issue of serious concern. I can't contribute ...

I think Mark has done a great job with the new format newsletter. Thanks to those who have posted messages about my departure as Chair and their kind words. Unfortunately for you all, I may have stood down, but any reports of my demise have been greatly exaggerated - I now have more time to post mes...

Hi Cissi I think everyone's posts show just how unpredictable and individual KC is. To confuse you even more, I was diagnosed at age 11 and have worn scleral lens for over 40 years, having been told a graft or transplant was unavoidable in one eye or the other four times but always found an alternat...

Firstly apologies to Sajeev - I have replied but they are returned undelivered for some reason. I agree with your observation that we are the customer and in many respects we are generally going to know (within the limits of options available and appropriate) what is best for us. Once conference is ...

Thank you to everyone who has responded. I have been given half an hour to speak although I am told I can overrun. Since the speaker before and after me is Ken Pullum time hopefully will not be a problem. Ken will just have to talk even quicker than usual! I think those attending could be anyone - d...

I have been asked to speak to some optometrists and others at a study day devoted to Keratoconus, giving them the patient perspective of KC. In other words, it is a chance to give the professionals some idea of how we perceive them, how things can and do go wrong and what it might be helpful for the...

Can i just agree with what Paul posted - namely if in doubt, declare. I have been involved in claims in the past where conditions had not been properly declared or declared at all and when insurers found out they refused to cover the risk. Those involved then faced personal liability for the damages...

It is great to see so much going on but , as usual, I make this post with my pompous KC Group chairman hat on. Firstly I am only a layman and have no more medical knowledge than anyone else. So it worries me a bit when I think of those newly diagnosed who find our site and see assertions that one th...

I had eye moulds done in 1964 and again in the late 1980s. The first was truly scary because I was a child and nobody bothered to explain what was happening or why. By the 2nd time (when I was petrified because of the childhood experience) it seemed far less traumatic and only caused very minor disc...

I have tried a pair from eyetrainers which do help with focus and clarity. Even when wearing my sclerals the world has much sharper edges viewed through pinholes. However all the pairs I have found have many holes including the ones I am using. Some years ago I remember trying a pair at a hospital w...