UK Keratoconus Self-Help and Support Association

Hi all my scleral lenses are marked to, so I can tell which way around to hold them when I put the in. The only problem with that is the marks are one and two small dots on the lens edge and I can't see them! So one of my able assistants gets called to do the job or I put them in and out a few times...

Hi all It does seem really silly doesn't it when the only way we can see is with lenses and when we speak to the people in the chemists they advise 'contact lenses are looked upon as for vanity and therefore solutions are not available on the prescriptions list' Well my 'barbie soup bowls' are certa...

Hi all On the subject of going red and fainting, it was very warm especially at lunch time. John - you were very safe though what with Sweet sat in front of you and my sister the nurse behind you I don't think you would of had a chance to faint before one of them was tending to you! :twisted: Thanks...

Hi all

Fingers crossed and all being well I'm coming too!

See you then

Susan

Hi

Why don't you PM me and then maybe we can chat on the phone, what you are mentioning all seems very familiar to me!

Keep trying and don't give up

best wishes

Susan

Hi all I want to second what Karl has posted you 'should' be covered by DDA however as Carl say's and as my solicitor quite clearly told me in the end it comes down to the tribunal. Basically it is a load of old tosh, the law needs re writing as it is too woolly. For example if you are deaf you are ...

Hi Pat Just starting out, it's just 11 years - well I suppose we got past the 7year itch and John keeps reminding me that the more years pass by the more of my pension and income he will be eligible to claim if I decide to trade him in for a younger, younger model (he is 3yrs younger than me). :roll...

Hi Someperson I have had my scleral lenses now for approx 4 years and I can still get air bubbles when I put them in! I have found that the more I worry about it or hope it won't happen the more it does. So after much worry and fretting I now just stand leaning over the bathroom sink and try to hold...

Hi Pat

Sorry have only just read your message, I was away at the weekend as it was my wedding anniversary.

Please do email or call if you feel like a chat.

best wishes & take care

Susan

My eyes are pretty dire first thing in the morning as well and to be honest I don't feel that my employer understands that. Nor for that matter was the hospital who fit my scleral lenses aware that it could take me anything between 2 - 3 hours from getting up to putting my lenses in and being able t...