Search found 2128 matches
- Tue 11 Jan 2005 8:24 pm
- Forum: General Discussion Forum
- Topic: DLA advice needed
- Replies: 10
- Views: 9118
DLA advice needed
Has anybody successfully applied for DLA? One of our members has recently had her application turned down and is intending to appeal this decision. She would welcome any advice from people who have succeeded. The main grounds for rejection seem to have been an unhelpful hospital letter. If you can h...
- Mon 13 Dec 2004 9:36 pm
- Forum: General Discussion Forum
- Topic: Thanks for donation
- Replies: 1
- Views: 2508
Thanks for donation
To the anonymous group member who organised a fund raiser at work and raised almost £200 for the Keratonus Group, many thanks. Your efforts are much appreciated.
Anne
Anne
- Thu 09 Dec 2004 9:02 pm
- Forum: General Discussion Forum
- Topic: Advice needed please
- Replies: 12
- Views: 10603
Advice needed please
Hello Ann Good to hear that your appointment has come through quickly after all. Just wanted to add that the Keratoconus Group has some literature on the condition including the report of our 2001 conference with an article about scleral lenses (they're the ones which cover the whole eye so they can...
- Thu 25 Nov 2004 9:18 pm
- Forum: General Discussion Forum
- Topic: Supporting my son
- Replies: 2
- Views: 4410
supporting son
Carena I hope you haven't totally given up on us after all this time without a reply. I don't know if you spotted the 'Supporting Students with KC' leaflet which you can print off the website, and which your son may want to give to his tutors. We also had a conference in 2003 which included several ...
- Wed 15 Sep 2004 3:47 pm
- Forum: General Discussion Forum
- Topic: I have a Down syndrom son who has been diagnosed
- Replies: 8
- Views: 7311
Son with Downs
Hi Karen
If you e-mail me direct anneklepacz@aol.com I can send you a helpful leaflet produced by Gill Levy of the Multiple Disabilities Unit at the RNIB on 'Keratoconus in people with learning disabilities'. Look forward to hearing from you.
Anne
If you e-mail me direct anneklepacz@aol.com I can send you a helpful leaflet produced by Gill Levy of the Multiple Disabilities Unit at the RNIB on 'Keratoconus in people with learning disabilities'. Look forward to hearing from you.
Anne
- Mon 14 Jun 2004 8:47 pm
- Forum: General Discussion Forum
- Topic: KC and hay fever
- Replies: 3
- Views: 4584
KC and hay fever
A group member who doesn't have internet access rang me the other day to ask for tips on coping with hay fever - he's finding it difficult to wear his lenses at the moment. As I'm lucky enough not to have that problem, I'm posting this in the hope that someone can offer me some tips to pass on. Some...
- Thu 27 May 2004 8:52 pm
- Forum: General Discussion Forum
- Topic: Good Days and Bad Days
- Replies: 4
- Views: 5008
Good days and bad days
Dear Susan The Group's 2nd conference last year included various talks on coping at work (a booklet of the full proceedings will be available in a few months time). If your employer continues to be difficult, you could contact the Disability Employment Advisor - there should be at least one at each ...
- Sun 16 May 2004 4:46 pm
- Forum: General Discussion Forum
- Topic: pain
- Replies: 9
- Views: 8494
pain
The Multiple Disabilities Unit of the RNIB have produced a useful booklet 'Keratoconus in people with learning difficulties'. You can contact them on 020 7388 1266 and ask for the Unit. They also produce a number of other factsheets on various aspects of eye care in people with learning difficulties...