UK Keratoconus Self-Help and Support Association

Please don't take this the wrong way.....however it seems like, at the minute, you are only slightly affected. I realise that it must have been very frustrating/disappointing to have been told about this when trying join the RAF, however in reality, if you stay as you r now, you will be very lucky. ...

Another possible situation to be covered by a message on rear of t-shirt.....

"...I'm not ignorant.......I just don't see too well...."

Mugs r a good idea too!

A leaflet that could be given to your employer would be brilliant. When I first started experiencing problems I gave a copy of the booklet produced by the group to my employers which was very quickly passed back to me. Now I am struggling again a lealet would help, it seems whilst I coped relatively...

Mark Have not had this specific problem (as yet) however have found that since the sun started to come out and the days have got lighter my eyes seem to be a lot more sensitive. They were sensitive before and probably one of the reasons why sclerals were first given to me back this time last year. A...

Phil You mention Moorfiels in your last message. I understand that Ken Pullum is very interested in KC and has a lot of involvement with scleral lenses. If you read some of the articles on the KC website you will see that he has quite a lot of input. About 16 months ago when I was going through a ba...

Phil not sure that this is help just afew thoughts. Have you tried the 'How to contact us' section of the website (just under the icon for the discussion page). It gives a link of how to contact Anne Klepacz who may be able to supply some information via the KC group. Other than that as my geography...

Shirley

How are the bubbles? and the lenses for that matter.

Susan M

Well you still sound pretty cheerful which is good. You will see from reading other posts on this discussion forum that KC is different for us all. Hopefully you will find that your contact lens fitting goes well and that your eyes like lenses. If not don't be put off straight away as there are many...

Anne, thanks for your advice and comments. At my hospital appointment on Thurs it was confirmed that the left scleral lens needed reftting and one is now on order for me, not sure how quickly it will arrive. The not so good news is that I now have some scaring on the left eye which, was not there ba...

Paula, thanks for your comments. I am due at the hospital Thurs and also my own GP so I will see what they both have to say. I agree with your comments as to how hard it is to try to get people to understand. If I have a pound for every time they had told me "why don't you just get some glasses/put ...