UK Keratoconus Self-Help and Support Association

Thanks everyone for all the help, suggestions and encouragement, it’s really very much appreciated and has made me feel a bit better about the whole thing. Unfortunately taking a week off to get used to the lens is not an option, much as this would be useful. As regards putting them in in the m...

I went to Moorfields on Friday to get the lenses that ad been fitted and ordered before Christmas. Unfortunately the one for my PK eye wasn’t the right fit so had to be redone but the lens for my other eye was ok so after the lesson on cleaning and inserting/removing, I was sent away with the o...

I recently transferred to Moorfields after 7 years under the care of Bristol Eye Hospital. I’m not sure what you mean by a keractometer - but my KC was regularly assessed with a topography scan. Of course the service was not perfect, no service ever is, but for the most part it was good, they w...

I just thought I would add my two pence' worth re. satisfactory care - I have to disagree with you Steven that it is unsatisfactory to have to wait more than 15 minutes beyond 'appointment time'. Yes waiting for 2 hours can be frustrating, but I think that we DO have an excellent health service in t...

Yes, I get scared by KC too, and the uncertainty of the future. I too was diagnosed by my optician and told ‘not to worry’, although having asked the inevitable ‘will I go blind’ was answered with ‘no but one day you may need a corneal transplant’ which without any othe...

Pat - two weeks tomorrow I'll be in exactly the same position as you - and I'm also pretty scared, you're not alone, and it's ok to feel that way. Hope it all goes ok tomorrow for you, let us know how you get on *group hug* xx

wuff wuff wufff!!! *wags tail in agreement*

Congratulations, that's brilliant news!

Thanks for the replies everyone. Jay thanks for the article, that’s very reassuring to know, and yes the ophth said that there are pros and cons to small grafts, pro being that rejection is less likely (although I’ve already had one rejection episode but they think that settled down ok wit...

After having been under the care of Bristol Eye Hospital for 7 years, I transferred to Moorfields and had my first appt there this week. For a while I had started to be slightly doubtful of some of the things that I had been told in Bristol, and in some ways the appt this week confirmed that. Bristo...