UK Keratoconus Self-Help and Support Association

That's been the consistent advice I have been given too.

Have they explained why? Have you had them before? I can see they can be triggered by surgery so hopefully as things settle down they will begin to subside.

I think you are on for an A&E visit or at least another video call ...

I'm concerned about the pain you are still experiencing.

I think you need to go back to A&E, I've found evenings and weekends a a good time to turn up.

I've not had a DMEK, but have had two grafts one PK and the second a Femtosecond Laser-assisted DALK. If there is a 'trick' to travelling, obviously you need someone with you but be ready to go as soon as the hospital says you can leave. I'm about 1.5 hours door-to-door by bus/underground and train....

It is quite common for patients to have part of their treatment privately and then swap into the NHS. The NHS and your consultant should be able to make this process a smooth as possible. If you are seeing a consultant privately tell them that you will want to swap back at an appropriate stage. A us...

Are you being seen at a hospital or elsewhere? It could of course be the material, but towards the end of my Innovative Scleral wearing, fitting became increasingly challenging and sometimes requiring refits every 6 months. There are fitting guides and best practices that Optoms work to, but sometim...

I have a corneal graft that was done in November 2021 and all is generally all is well with it. So far I have had about 6 of the 18 sutures (stitches) removed, either to improve the vision or because they had become loose. Currently, for other reasons, my health is compromised and I need to isolate ...

The scleral lens is mainly there to 'fix' the distortion caused by the KC. If your optometrist recommends you have one then is because your KC is bad enough that they cannot improve your vision anymore with spectacles. Once the scleral lens is fitting well, the prescription that is added to that len...