UK Keratoconus Self-Help and Support Association

Did it continue for you? I'm asthmatic, hard asthma cough would have me screaming with pain I can't even take the other eye flinching with the RGP the pain goes into the re-grafted eye. Even a slight knock on the head hurts the re-grafted eye.
How can that ever tolerate a lens?

I feel for you, you've suffered a lot and I can appreciate why you feel anxious. I hope it's not another rejection episode. I'm thinking of you

Has anyone experienced re-graft extreme post operative pain, then settling but a sneeze or cough really hurting?

Hi, anyone used Blink Total Care with RGP's?
Unsure is this to alternate with Boston or weekly?
Thanks

They most definitely do, but the expectation of stoic positivity hinders any research in this direction

Very sorry to read this, I sincerely hope you are being given support and have a successful prosecution. Emotions do impact on visual acuity (and lens wear) in my experience but it's not area that interests practitioners, like everywhere else they expect positive stoicism

They are a necessity but spares have to be paid for and there's no accommodation by eye hospitals for income ditto solutions. PALS state (I have it in writing) if people on £74 a week or less can't afford it for friends & family to pay, I kid you not.

Survival rates of full thickness corneal grafts [Australian stats used by Moorfields]: 89% at 10 years post-op 49% at 20 years “ 17% at 23 years “ Re-graft survival rates: 2nd graft – 53% 3rd graft – 33% Survival rates for partial grafts [DALK] more commonly done now [which can’t be done to those wh...