UK Keratoconus Self-Help and Support Association

Hi Keiran Yes -- I've tried using various humidifiers which you can buy on the high street or online. The problem is that these are aimed at the domestic market (e.g. a typical 100 to 200 sq ft room). They can raise humidity levels from the typical 20-30% level you get with the heating on to a much ...

Hi Cripps I work in finance and Keratoconus does make life difficult -- spreadsheets full of rows and rows of figures can be a nightmare ! And like you, accuracy is needed but tricky to maintain -- it's easy to misread just one figure and get hopelessly wrong as a result. What's harder for me though...

Yes, agree with Andrew and Grant -- Gareth is probably one of the UK's greatest "unsung heros" of corneal disease outside of the professionals in that area. It would be a great shame to loose his contributions and I hope sincerely that won't be the case.

Hi Gareth Yes, you're quite right, sophisticated facilities are available for audio and/or video conferencing -- if you've got the time, the budget and the know-how to implement them and keep them working. We're sadly lacking in those qualities to varying degrees ! So it's not something we're choosi...

Hi Lea

We have only one source of funds -- general donations. We don't have income from capital / investments etc.

Cheers

Chris

Hi Lea Like I say, I'd have really liked to have been able to participate in this programme. But I -- along with the other committee members who work, have families etc. -- have to balance the demands of the charity vs. the demands of the rest of my life. And even for those of us who don't work full...

Hi Lea My desk draw here is sinking under the weight of USB mobile broadband devices, PC Express Cards, Bluetooth-equipped phones etc. They all have the same limitation -- they use 3G network. It's not reliable enough -- even (or perhaps I should say "especially" !) -- in central London to...

Hi Lea Yes indeed, I pay the invoices so I know what the bills come to ! I don't have the invoice in yet for the last mailing but the September 2013 newsletter was £729.96 (our supplier didn't split the postage costs vs. the printing costs but that's the total. It doesn't vary much from newsletter t...

Hi Gareth, as far as I know, no-one on the Committee will be taking part in the programme. For me, I'd have loved to but the alas not so small matter of a day-job and family precluded this. If we could stretch to having paid support staff things would be different but alas that's not the case here. ...

Hi Gareth, I've moved this post to a new thread. Yes, we could consider moving the AGM around the country from year to year -- bearing in mind though that you can never please everyone ! For instance, I'd be okay for, say, Birmingham, Bristol or Plymouth. But I'd struggle to do Manchester there and ...