UK Keratoconus Self-Help and Support Association

I had both a continuos and interupted stitches in both eyes. The first graft hurt, I hardly slept that night and was in pain. I mentioned it next morning to my surgeon and he said next time I will order some pethedine, ask for that post surgery and the pain wont build up to the same point and you sh...

Sorry Louise.. just a quick sidetrack in your post! Prue - do you happen to know approx. how much the C3R treatment costs in Oz? I'm having intacs done (the 1st eye this Fri - I can't wait!!!) and then they've mentioned I should get the C3R done sometime after. Because it is performed at a differen...

Louise Hope it works well for you. What you did using C3R at diagnosis, is what the Doctors participating in a C3R trial here in Australia hope to achieve for every one at diagnosis. If the trial is successful they hope to get it covered by medicare and have it as an initial treatment option. regard...

I see well post graft, I drive and recognise my kids in the playground, and very rarely go up to the wrong child at school thinking he is mine. But change the norm and I revert to the fear and uselessness of my pregraft days. You learn to cope, we all have, and post graft I see great, but you still ...

Sweet My sister is younger than me and has KC, she is also like me post graft. She is as stubborn as they come and follows her own path even though I know she could benefit from my experiences. Stubbornness runs in our family and we both dig our heels in. Needless to say there are a few fireworks. H...

Post grafts, I see well with glasses, however I went to the supermarket to do a mystery shop on Sunday, and they were renovating it. I wanted to buy razors and bisuits as well as a couple of other items. Because they had removed the ceiling in the back of the shop, it had no lighting, and my anxiety...

James

Glad your back, and glad you got the treatment you needed. Hope you enjoy the rugby, and as Val says hope the next few months improve for you.

Prue

I was well below the driving standard (actually below pedestrian standard) when I had my first graft and was driving 6 weeks later, with uncorrected vision of 6/6 out of the grafted eye. Definitley not the norm. He took my first stitch out and the world came into focus. It was like one of those movi...

Yesterday my niece turned one, she is my sister who has kcs daughter, she was also baptised (I am now her godmother) any way there was a huge bbq and heaps of people, and when we arrived my sister asked my husband (who is a vet) if he could remove a stitch from her eye. Paul refused, but my sister h...

Ann you may never (and probably wont ) need a corneal transplant. Only about 10% of us do. How fast and how far it will progress really cannot be answered. It varies for everyone. It is good you found this site so quickly because it is a good resource, but don't be to scared by our stories because t...