UK Keratoconus Self-Help and Support Association

Hi Gill501, I was around the same age as you when my KC was diagnosed and I've been living with it now for about 8 years. When the KC was first diagnosed, I was scared, blamed myself and kept asking, why me? My twin sister has KC too, although not as advanced, and her son is also being monitored in ...

Would love to have met Princess Diana, Elvis Presley and Marilyn Monroe. As a kid, I met Jimmy Saville when he was out jogging, also thought I spotted Jarvis Cocker at Hampton Court a few years ago. My Mum used to work at a private boarding school and the Qeeun is their Patron - went to their annual...

I wish that I had found this forum prior to having my corneal graft last year, as having read some of the very good advice on here, I would've been a little more prepared and had more of an idea of what to expect once I got home! Like some of the other posters, I've had setbacks since the graft, but...

Thanks guys - you've given me some good ideas regarding which book to get stuck in to next.

Perhaps (hopefully) the Beeb have been inundated with emails, hence the delay in responding to yours! Do let us know if you hear anything further. I was the (extremely grateful) recipient of a donor cornea last year and it'd be awful if the majority of donors decided against the corneas.