UK Keratoconus Self-Help and Support Association

Thank you so much for telling us about this journal. I have had a look and it looks really interesting. Thanks Lynn

Well done on the book launch and thank you for raising awareness about KC.
Congratulations!

Thank you for your thoughts Lyn White, the follow up issue is of concern of course and one I would need to investigate. It is important. For Daniel who opened this thread this is the answer I have had from the hospital in Dresden. They first want topography results sent to them and then if crosslink...

Thank you Andrew. I think I am beginning to realise how difficult it is to make generalisations about treatments for KC. I had not read too much about about soft lenses being used. As I said I am not sure of the name of the lens suggested but Munster if they are Kerasoft then I am glad to hear that ...

Thank you Dr Goren. It is good to have a honest clear answer.

Hello. It has been suggested that large soft lens might suit my son more than the gas permeable. No name was given - he is seeing someone who specializes in 10 days.
Does anyone have any experience of these type of lens? We are having difficulty in getting a good fit with hard lens.
Many thanks.

Hi I am looking into having crosslinking done for my son who was diagnosed in Dec 2011. I am interested in the thought of having the procedure done in Germany. I have written to the hospital in Dresden where it was first developed; not had a reply yet but I am thinking about it as they will have a l...

Thank you Andrew. It certainly is good to know that there is a supportive community out there. Thanks. Rose

Thank you Anne, this appears to be a very informative and friendly forum. I shall be spending some time reading up about treatments and learning from other people's experiences. Thank you for your hard work responding to members.

:D Thank you jst at home and all the other people posting on this thread. My son has just been diagnosed with KC and we are at the start of a long journey of learning. He is about to be fitted with a lens. So this thread is useful. Please can someone explain what crosslinking is though?? I cannot fi...