UK Keratoconus Self-Help and Support Association

Ok, I've rung Moorfields and spoke to his secretary and she said I can email my questions to him and that she will print them off and he will either email them back or write, so I feel heaps better for this! I'm now drawing up my questions and getting an academic mate to look at them cos I want to s...

I apreciate all views Rosemary, I'm thinking of trying to contact his secretary to ask 'what do you suggest I do in order to ask a few more questions?' She might tell me to email the questions for example which I wouldn't mind doing. From the research I've done and had done for me so far it appears ...

Yes good strategy Andrew, agree Rosemary I need to ask more but we all know that letters go into the Bermuda Triangle, do you think if I asked for another appt with him before surgery I would get one?

Thanks Anne that's helpful, KC does seem to yield the best results overall, I'm trying to locate anything on second eye rejection, it's trying to find the correct way to ask the question to do a search! Anything I locate I will let you all know about. My left eye did have episodes of rejection [abou...

Thanks and yes if anyone else has experience of re-grafts please do post here and let me know your experiences I would really appreciate it. Anne are you aware of any research papers relating to risks to the other eye? This worries me because I'm assuming it would mean no lens wearing which would le...

http://www.springerlink.com/content/7683m547275055t7/

"patients who undergo corneal transplantation should be maintained under close ophthalmic surveillance" - do you think they mean a web cam or CCTV in your home directly linked to Moorfields?!

PS, my middle aged glasses as I call them for my right eye in addition to the lens for reading might need reviewing within 1 yr rather than 2 :roll: I still keep forgetting to put them on because my little brain says, you have a lens in, you wear lens or glasses not both, brain says no....like compu...

Thanks Rosemary and Andrew, good to 'see' you too :D There are these papers, kinda scare me a bit but you can get lost in statistics; http://www.ncbi.nlm.nih.gov/pubmed/16488955?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_PMC&lin...

Hi there, this is still Lou the Director of Sci-Fi and Silliness and Cake but I changed ISP and address and ended up having to re-register, so I'm not new! Anyone here who has emailed me who wants my new email addres please PM me. Now, serious stuff - I was in clinic today and have been offered a re...