UK Keratoconus Self-Help and Support Association

Went to the optometrist today for my annual check up. Grafts look great, 1 stitch in right eye, 2 in Left, those stitches are nearly 12 years old. Glasses script still the same. All cool. My optic nerves however have a deeper cup than normal. Apparently this can be a sign of glaucoma, so now I need ...

From my reading on this site I came to the conclusion I was at a greater risk to cataracts because I had, had grafts. I informed my husband of this, because I felt it was interesting. He said "Of course you are, hadn't you realised that before" disheartening when my perfectly sighted husba...

This is an area where Australia is quite different. My KC was diagnosed by and optometrist, as was my sister. Then we were referred by the optometrist to an opthalmologist and they share the care. I go into my optometrist for annual check ups, which are a complete eye exam, now in my case including ...

Stick little bells to their backs with safety pins, then you can here them. Put them where they cannot reach them. It works apparently. Then if they play hide and seek you can find them. I had my third when the eldest was 2 and a half, tiredness in late pregnancy is normal, and the more kids the mor...

Sorry Gareth, but if oral Vitamin B was able to stop KC, then it would be very rare in Australia, because we are happly little vegemites, as bright as bright can be, because we all enjoy our vegemite, for breakfast, lunch and teach. We all enjoy our vegemite, wa all adore our vegemite, its high in v...

From your experiences how long does it take to gain any benefits? In my firsy eye I had basically no vision for 6 weeks then a stitch was removed and I had 6/6 vision unaided. I now where glasses, but that moment was something like a miracle for me. How has it changed your lives? I can see, and what...

Bugz Dont worry to much about your folks. It is very unlikely they are affected. The Tassie fires are affecting touristy communities but they get the tourists out early. The victorian fires are in rugged terrain aroiund the snow fields. Again tourists are gotten out and roads are closed. Some New Ze...

My husband is driving to NE Victoria, to help with the response in what we call the North East Fires. At the moment half a illion hectares, and 19 houses have burnt, along with some stock, sheds etc. My husband was phoned last night and told to get there today as part of a 4 person team form the Nor...

My sister smokes and her grafts have been more hassle than mine. I gave up nearly 13 years ago. I was not smoking at the time of either graft. Coincidence possibly. I gave up my 70 a day habit cold turkey, just before Anzac day 1994. For me it was one cigarette I gave up, if I never have that next c...

Is it normal to have your grafts under general in the UK. Here the norm is under a local. They played Neil Diamond for my first surgery and Johnny Denver for my second and the anaethitist from the next room came in and told my surgeon his patient jumped upon him during her surgery. (apparently that ...