UK Keratoconus Self-Help and Support Association

Thanks for the extra plug Gareth. As you say, endorsement of Intacs from NICE is likely to mean that they will be an option for many more people on the NHS, so it's important for people to have their say (and of course, NICE need to know about any negatives, too). And just a reminder that although o...

Many thanks Karl and to the others who have done this. For anyone else, it's not too late yet - the consultation runs till 24th April, so if you've had Intacs fitted, do have your say.

Hi Shabana - all the very best for tomorrow. On Wednesday you'll be wondering what all the fuss was about! Look forward to hearing how you get on. We'll all be thinking of you!
Anne

Hi Emma and welcome! My grafts are 21 and 19 years old (one in each eye) and although I had a few rejection episodes at the beginning, these were successfully reversed and the original grafts are still going strong. Knowledge about grafts and how to deal with rejection (if it happens) has been impro...

Hi Lesley - I'm sure one of the optoms here can explain this much better than me, but as I understand it, in very simple terms there are 2 kinds of astigmastism, regular and irregular. Loads of people have regular astigmatism, which can usually be corrected with glasses. Those of us with KC have bot...

Welcome Mark! As Emma and Debbie have said, please don't get freaked by some of the posts on this forum. The people whose KC doesn't cause them any problems (and there are quite a few of them!) very rarely post on this forum, so it's easy to get the idea that KC is all misery! Just a thought on your...

NICE (the National Institute for Clinical Excellence) have drawn up draft guidelines on the use of Intacs for KC. There is now a consultation period 27th March to 24th April during which they are inviting people to comment on the guidelines. The feedback will be used when they come to issue the fina...

Hi Kerrie - sorry to hear that you're having so many problems when things looked so good initially. Could you not ring the clinic which fitted the lenses for you and tell them what's going on? Or even go in to have things checked out? It's possible you've got an abrasion if you did get a bit of dust...

Val - I really feel for you! I had the same experience with my first graft of waiting ages for any benefit. But I did finally get some useful vision with glasses - not as good as I later got with an RGP for that eye, but a lot better than nothing. So I'll have all my fingers crossed that you will fi...

Wonderful news Anne! Sorry you can't make the AGM, but I hope you'll come to the next social to show off your funky new glasses!
Anne