UK Keratoconus Self-Help and Support Association

I never drive at night. Although I am at the legal line on the eye chart, I know I don't see as well at night and the distortion from head/street lights is really bad with the stitches in my right eye. I can't guarantee I could see someone if they stepped into the road and as I drive a Shogun they w...

Thought that would get your attention! Seriously though, every now and again I feel like my eye has a "snapping/twanging" sensation, quite painful and happens with no warning! Any one else experienced this one? Off to Liverpool tomorrow for check up so will try to remember to ask then too, but I usu...

Definately interested. Is this a cyber fund raiser eg. a photo show - animals etc. We've held a couple of local line dancing evenings locally which have raised £500+ for the local Riding for the Disabled group where I teach. Dress down days in work places are good too. I'm happy to help in any wa...

Christmas greetings from a cold and frosty Isle of Man - my family are just relieved to have survived my cooking for another year - even our two labradors refuse to eat it sometimes! Tubs

I read somewhere that corneas aren't checked for HIV which is why none of us can give blood anymore. Tubs

I think the possiblility of rejection is always in the back of my mind, and I've a good idea of what to look out for. My biggest problem is living on the Isle of Man I have to get a flight to Liverpool for treatment. When I had my first eye done 3 yrs ago I thought it was rejecting and went to local...

I'm sure we all see christmas lights differently to non KC ers. Pre graft it was the multiple pom pom effect and post graft with stitiches everything looks like stars. Driving down Douglas prom this evening - hubby was driving, not me I hasten to add - I quite enjoyed the starburst effect of all the...

Thanks John - I look like Max Wall on steroids! Now you can see why I'm called Tubby!

Hi Val. Don't worry I quite often close my eye and have even made a diy eye patch by covering one of the plastic ones the hospital gave me with duck tape! My eye still waters but I'm now off tramodol and onto nurofen. At present I've got a rotten cold so sneezing isn't much fun, keep my hand over my...

Ok, perhaps I should have waited more than 3 weeks and it would have been wiser to have done the 5k. However I did the 10k, 84 mins which is 7 mins slower than my PB and felt really wobbly last mile and quite ill when I'd finished. Soon recovered and the eye feels fine as it did throughout the walk,...