UK Keratoconus Self-Help and Support Association

Hi space_cadet This is something we do keep under review -- and balance the costs of printed mailing and postage for our newsletter vs. issuing it electronically. While we do live in an age of electronic communications, printed/posted materials still have a higher level of impact, reader engagement ...

I'll lock this topic from this point on -- if anyone wishes to contribute to the programme, by all means contact the production company.

Hi Steven We felt it best to let members approach the TV production company directly if they wished to get involved with the programme they're proposing. We often get approached by medical professionals, research organisations, media, government and QANGO organisations etc. to provide input into the...

Thanks all for the contributions. While we would love to be able to offer a streaming facility to the AGM and have considered this, the venue we have hired is not set up to offer this easily -- so we'd have to use a 3G connection and/or WiFi hotspot -- neither of which are sufficiently reliable to p...

Hi all

I'll move subsequent posts on this thread to Charity Matters viewtopic.php?f=23&t=15591

Cheers

Chris

Hi Buzain It would definitely be worth asking the clinician who performed your Crosslinking procedure what the degree of progression is and why it is seemingly occurring despite your having what should have been a preventative measure. It could be that you were a marginal case for meeting the criter...

Thanks Lea, I understand the problem here.

I'll speak to the rest of committee and check how we want to proceed. Will keep you updated !

Cheers

Chris

Hi Lea, apologies, when I said "bandwidth" I didn't mean in the technical sense ! It was in the sense that it took more of someone's time than they had available. Like I say, Twitter has a feature which enables users to check if an account is managed by a person or organisation (a "ve...

Hi Lea The Twitter account was created on a voluntary basis by one of our members who unfortunately doesn't now have the bandwidth to keep it under day to day management. We did consider requesting it was closed but as people seem to find it useful, there's no real reason for us to do so -- if anyon...

Hi Louise, I swear by Zoomtext http://www.aisquared.com/zoomtext Not, alas, cheap at $399 (sorry can't find UK pricing in the time I have here) Could you get support from Access to Work or pester someone at the Jobcentre Plus / Local Authority / DWP / similar to try and get a grant ? (or do I hear a...