UK Keratoconus Self-Help and Support Association

Louise - I should have looked up exactly what Mr Dart said (I did the transcript for the booklet so I've got it here). "We've only got one 25 year study which showed 60% survival in first eyes at 25 years, and 90% in second eyes. The difference is because of the effect of rejection in the first...

The other thing to bear in mind re graft survival is that graft techniques and aftercare are improving all the time, so people who have had grafts recently are probably more likely to have grafts that stay healthy for a long time. I think that's something John Dart mentioned in his conference talk w...

Just to add that you'll find a summary of the talk John refers to in our Summer 2006 newsletter, which you'll find in the newsletter section of the main site. (I'm sure someone cleverer than me will provide a link here!) When we did a survey of our members in 2003, we found that around 15% reported ...

Thanks Louise for starting this thread - Ken's talk at the conference was inspirational and did raise important issues. Just to give a bit of background on the members' survey we did in 2003 (just before the conference that year). We had 600 members then (we now have over 1100) and just over half re...

Hi Marcin - nice to see another Polish flag on the forum. I was born in the UK but still support Poland when they play England even though they keep getting beaten!
Anne

John - on behalf of the committee and everybody else out there can I say how very glad we are that you found us in 2001. Where would we be without you? A treasure beyond price!!
Anne

Claire - good to hear your positive story. And of course, there are many more people like you out there. Many people only come to this forum when KC does affect their life - but lots of people with KC get good vision with glasses or contact lenses and find their KC doesn't progress or stays stable f...

Sarah - so sorry to hear about your setback but so glad you went back to the hospital to have it looked at. We'll all be thinking of you on Monday and hoping they'll get it all sorted so that you can have a restful, peaceful and healing Christmas!
Anne

Sonia - as Piper says, there's always something that can be done. There are many different lens options these days for KC and new treatments coming along. And it's important to remember that only about 1 in 10 of people with KC ever get to the stage of needing a graft - the vast majority do get pret...

James - you are on the mailing list, so you should get it today or tomorrow (mine hasn't arrived yet). Jay - you had to be there to witness the faint - it's been edited out of the DVD!
Anne