UK Keratoconus Self-Help and Support Association

Hi Heather, One option which may be worth considering is "Access to Work". I understand that under some circumstances, they may provide a companion to assist you on your commute. I agree with the suggestions above though - talk to your HR and occupational health, get them to confirm that y...

Only a little bit science fiction from me... There have already been experimental patients who have had a (small) number of artifical pixels interfaced to their optic nerve. I'd use my squillions to speed up this research and give me an HD level of pixels. 6 million dollar man? Nah, it will cost FAR...

Your cornea is made up of several layers of cells, and the job of the back layer (the endothelium) is indeed to pump water out of the cornea. Unfortunately, we are born with a number of these endothelial 'pump' cells, and they are never replaced. So it does indeed sound feasible that you could need ...

The AGM is indeed carried out according to our constitution which is approved by the Charity Commission. Basically, there are no positions available for election. Those present at the AGM who are entitled to a vote (members who are on our mailing list) get a chance to elect a committee. Each year fo...

Hi Lola,

From the talk that we had a couple of years ago by Mr. Tuft, the stats are something like:

If a parent has KC, then there is a 7% chance of a child developing KC.
If both parents have KC, then (depending on which genes each parent have) the odds are between 7-49%.

Indeed.

Oops - that's my fault - sorry. I've corrected that link now. We currently only have the 2016 conference online (plus one or two other videos), but as we re-process those old files, we plan to make more videos available; and certainly we will be continuing to promote the videos online rather than vi...

I think we've had one so far in 2017, with another soon to appear. I'll check why the latest one isn't online.

I wasn't involved with this at the time, but I don't see such a thing at Moorfields when I visit.

No, you're not automatically a member if you are posting on the forum.

Members receive our newsletters, and we need to have full postal addresses for that, so the charity membership registration is different to the forum one.