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by CrippsCorner
Tue 19 Jun 2018 10:34 am
Forum: General Discussion Forum
Topic: Complications of CXL. Advice needed please
Replies: 9
Views: 7560

Re: Complications of CXL. Advice needed please

Hi Emma, If you put 'corneal haze' into the search you'll find quite a few posts on the topic though as far as I remember, there was only one case of haze persisting as long as yours has. That would be me! Couple of years on now and my haze is exactly the same. My experience though does seem slight...
by CrippsCorner
Tue 09 May 2017 11:31 am
Forum: General Discussion Forum
Topic: Protective effect of estrogen?
Replies: 4
Views: 15157

Re: Protective effect of estrogen?

18 month bump!

I still haven't found an answer to my query above... can rubbing your eyes after CXL effect your KC? I seem to do it a lot throughout the evening. Maybe something to do with lack of sleep due to having a baby at home :P I just don't want to feel like I'm undoing good!
by CrippsCorner
Tue 09 May 2017 11:18 am
Forum: General Discussion Forum
Topic: So, tried out some scleral lenses. A few questions...
Replies: 11
Views: 12328

Re: So, tried out some scleral lenses. A few questions...

Bit of a bump as I just had one more question regarding the scleral lenses... how are they for storage? Since being told that I cannot wear them for the whole day, I've just kept them in a spare lens container with the solution inside. I've changed this only once. Will it still be alright? Not sure ...
by CrippsCorner
Tue 21 Feb 2017 7:54 am
Forum: General Discussion Forum
Topic: So, tried out some scleral lenses. A few questions...
Replies: 11
Views: 12328

Re: So, tried out some scleral lenses. A few questions...

So turns out I'm getting blood vessels appearing under my eyelids :shock: so it's been recommended I don't wear these lenses for more than 5 hours per day. This is very unfortunate and to me kind of makes them pointless... if I can't get through a full days work (9 hours including travel) what's the...
by CrippsCorner
Wed 15 Feb 2017 10:39 am
Forum: General Discussion Forum
Topic: Haze in the cornea after crosslinking
Replies: 6
Views: 5727

Re: Haze in the cornea after crosslinking

It's been around 2 years since my CXL.

Yes I had steroids for some time, but they eventually caused my eyelid to droop (there's a name for this, can't remember now) however I stopped using them and it went 99% back to normal.
by CrippsCorner
Wed 15 Feb 2017 10:37 am
Forum: General Discussion Forum
Topic: So, tried out some scleral lenses. A few questions...
Replies: 11
Views: 12328

Re: So, tried out some scleral lenses. A few questions...

Yes this is what I have, the mini ones. Now I've been leaving them in for longer (my optometrist said try up to 6 hours) I notice they can cloud up around the 4 or 5 hour period and that's it; they stay like that forever. I suppose I could take them out, clean them and refill and get them back in ag...
by CrippsCorner
Fri 10 Feb 2017 2:51 pm
Forum: General Discussion Forum
Topic: Haze in the cornea after crosslinking
Replies: 6
Views: 5727

Re: Haze in the cornea after crosslinking

I don't want to scare you but for me, the haze never (fully) cleared. However it is much, much better than it was after a few weeks, as you're experiencing now. What I get from it now is slight 'cloudiness' and very bad aberrations (ghosting) However , I have recently got myself some scleral lenses ...
by CrippsCorner
Mon 06 Feb 2017 11:02 am
Forum: General Discussion Forum
Topic: So, tried out some scleral lenses. A few questions...
Replies: 11
Views: 12328

So, tried out some scleral lenses. A few questions...

After almost giving up thinking there was nothing to reduce the ghosting and general aberrations since my CXL, I decided to ask about scleral lenses at my next appointment as had heard positive things. At testing, to put it bluntly, they were brilliant. Ghosting reduced to almost nothing! A pretty r...
by CrippsCorner
Mon 06 Feb 2017 10:47 am
Forum: General Discussion Forum
Topic: New to KC
Replies: 2
Views: 3130

Re: New to KC

Just to add to what Anne said... did they do, as mentioned, a topography scan on a Pentacam machine? I wasn't aware you had to wait 6 months on the NHS (I had it done privately as it was the only option at the time) but if not, you need to get that done as soon as possible because it'll be 6 months ...
by CrippsCorner
Wed 11 Jan 2017 12:21 pm
Forum: General Discussion Forum
Topic: Driving with KC
Replies: 8
Views: 7321

Re: Driving with KC

I'm almost ready to give up on my left eye... soft contacts make it like 5% better, but it's not worth it for the annoyance and discomfort. I'm about to go for an appointment actually so will enquire about scleral, but I don't think they do them here.

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