UK Keratoconus Self-Help and Support Association

I've reached the age where I have to admit that I need a proper pair of reading glasses, rather than a cheap pair of ready readers, to wear over my contact lenses. I've been undergoing a refit of the contact lens for my right eye for over two years. I've kept promising myself that I'll treat myself ...

Graham, I wish it was that simple. But thank you for acknowledging our problem and striving to find a better solution. We do need it! I am seeing an experienced hospital optometrist but my right eye has been undergoing a refit for over two years. I seem to get comfort or vision. It's difficult to re...

Barry, I've always kept an old pair of lenses as a spare - I never go anywhere without a spare pair. The only time I've not been able to keep a pair was when they were totally unsuitable and they would have been no use as a main, never mind a spare pair. One possible reason that you might have been ...

Lynn, I agree with you completely. Anyone who deals with a KC patient on the High Street has to have a passion to deal with challenging contact lens fittings. Certainly in the early 90’s when I had success on the High Street 1 was aware that I was one of the optician’s challenges. I was also aware o...

imernater,

The list can be found at:

http://www.keratoconus-group.org.uk/optoms/index.php


Lia

Imernater, When looking for an optician to fit you with contact lenses do check that they are prepared/able to fit someone with KC (there is a list of KC friendly opticians on this site). The nhs/private decision is not straightforward. It's really a case of finding someone who has the lenses who th...

Hi Barry, How many lens fittings? Lots. It's something one just has to get used to. My right eye has had nine refits in the last couple of years; and I'm wearing the second as the others are either comfortable with poor vision or excellent vision and uncomfortable. So I guess it's another refit for ...

Chris, Thank you for the link. I've actually collected quite a file of information about different KC lenses all appearing to be the perfect solution to my contact lens problems. But why when I get a new lens, and it doesn't behave as the trial lens plus the additional refraction, I just don't under...

After wearing the same pair of lenses for more than five years I’m currently under going a lens refit which is taking forever. I currently have three lenses for my right eye A) – A Rose K2 which has reasonable vision (I can read a number plate easily at 25 yards) but there is still some annoying gho...

Ian, I have just had a go a rotating my sunglasses and: Left eye (6/6 vision) slightly sharper vision when glasses rotated through 90 degreess. Right eye no change when wearing any of the three lenses I have for this eye (the lenses have different levels of vision and comfort). I don't seem to be ab...