UK Keratoconus Self-Help and Support Association

Great news Andrew. And it can only get better. All the very best for 14th.
Anne

Cherish So sorry that you've had bad news now, when you should be really joyful! But I'm sure you'll be able to see how beautiful your baby is - doesn't everyone want to hold a baby right up to their face to say hello?! As Gareth says, it could be to do with your hormones being all over the place no...

That sounds like good news about your good eye! Although I haven't worn Rose K lenses, I think you'll find quite a few people on this forum do and find them very comfortable. Do you know how long you have to wait before your hospital appt? Let's hope it's soon, and you can get things sorted before t...

Sarah Yes it is possible. It happened to me with my first graft though not at the stage you're at, but when I had all my stitches removed after 12 months. The whole graft then started lifting off the eye (a very rare occurence, in case other graftees out there start getting worried!) Being ignorant ...

Glad to see this list is getting off the ground - it should be a useful resource for anyone looking for a KC friendly optom. I'd just like to clarify the situation re contact lenses and KC for any newly diagnosed forum users in the UK and any forum newbies. Anyone whose KC cannot be corrected adequa...

Hello Matthew and welcome to the forum. You'll certainly find lots of people to chat to about KC here. And we're not just a web-based group. If you'd like to join our postal mailing list to get booklets/DVDs of the conferences we hold, do get in touch by PM or e-mail anne@keratoconus-group.org.uk wi...

Welcome Russ! I too have had grafts in both eyes which have given me back good vision with either contact lenses or glasses (wonderful to have the choice!) If you PM me or e-mail me on anne@keratoconus-group.org.uk with your postal address, we have various booklets and a DVD of the last conference t...

Thanks for a very interesting post Jay. I wonder whether one factor in the rejection rate is that the study looked at grafts done for a number of different reasons, not just KC. I seem to remember something from our first conference which suggested that the success rate for corneal grafts was highes...

Lia - panic not! I've had an e-mail from the clinic today thanking us for the poster and saying they were taking it down to get it laminated but that it would be up again just as soon as this was done. I'm sure you'll all tell me if it doesn't reappear in the next few days!
Anne

Louise - I'm definitely willing to do anything I can to help. Although I'd had periods of depression before, I really hit rock bottom when my sight was at its worst. And it was my realisation when I got my vision (and my life!) back that I wouldn't have got quite so desparate if only I'd been able t...