UK Keratoconus Self-Help and Support Association

Can you not see the board with your lenses in Jayboi? Think I'd take John's advice and talk to someone about the problems you're having. If it's taking you a long time to put the lenses in that's likely to be when you're making your eyes sore. Maybe have someone make sure you're doing it right? Ther...

If the scarring goes deep into the cornea I'd assume it would be difficult but if your photophobia is anything like mine was then you shouldn't have to put up with it. Think I'd explain the extent of the problem to the main man and ask what could be done.

Seems hospitals each manage their provision in different ways. I guess the optometrists I see would call in a doctor if anything looked amiss. Seems odd if one doctor acting under the same consultant thinks an annual check is required and another doesn't want to see you ever again. Maybe it was your...

I assume that's along the line of the graft? If it's on the surface then there's certainly possibilities. The laser treatment I had took 15 minutes or so under local with nothing worse than the smell of burning. The treated eye has severe KC so the depth they could remove was limited but seemed to d...

Do you see a doctor at each check-up Alison? I generally just see an optometrist unless I ask to see a doctor. On the occasion before last I saw a young doctor (I think he was about 14 or so) who told me I didn't need any further checkups and would write me off. I asked if that was normal post-graft...

Certainly makes sense and I feel for you. Before my graft I did the hat and shades thing and felt like the local wierdo. Driving in summer on motorways I had the visor down and wore one pair of shades over another. I couldn't read from white paper outside and in sunshine could only open one eye or i...

Gareth and Alison, is the photophobia you suffer related to the grafts?

You obviously impressed him as someone who might understand long words and numbers Alison. They don't usually bother with me.

All that bric-a-brac is left over from grafts done over 10 years ago?

Interstingly 'bairn' was not originally a Scottish word at all. It is Scandanavian (barn) and means child. That's very disappointing. You'll be telling us the Chinese invented the bagpipes next. Or even worse, that the English had them afore the Scots. :( ( http://www.bbc.co.uk/dna/h2g2/A748208 ) N...

Jay, do you have any thoughts about why standards at Moorfields might have declined? I don’t know how easy it is to transfer Andrew and those assessments don’t give a breakdown of how departments within hospitals perform. City Hospitals Sunderland NHS Foundation Trust gains the highest rat...