Search found 2125 matches

by Anne Klepacz
Thu 10 Nov 2022 9:15 pm
Forum: General Discussion Forum
Topic: Keratoconus friendly opticians
Replies: 6
Views: 3145

Re: Keratoconus friendly opticians

Many thanks, Green. I knew Sophie had moved to Hove (she used to be part of a Harley St practice) but had no idea she now had all these branches. Many years ago I acted as a guinea pig when she was demonstrating fitting mini scleral lenses at a workshop so her interest and dedication to KC goes back...
by Anne Klepacz
Thu 10 Nov 2022 9:10 pm
Forum: General Discussion Forum
Topic: DMEK experience
Replies: 79
Views: 38084

Re: DMEK experience

So pleased for you! I hope it's progress all the way now.
by Anne Klepacz
Wed 09 Nov 2022 10:52 am
Forum: General Discussion Forum
Topic: Keratoconus friendly opticians
Replies: 6
Views: 3145

Re: Keratoconus friendly opticians

Hi Woildeye and welcome, I think the main reason you haven't had a reply is because most of us get our contact lenses through a hospital eye clinic where the optometrists with an interest in fitting KC and other interesting eyes are concentrated. That also has the advantage of lenses at the NHS rate...
by Anne Klepacz
Thu 27 Oct 2022 10:38 am
Forum: General Discussion Forum
Topic: Do you have 3 or more close family members with KC?
Replies: 0
Views: 20218

Do you have 3 or more close family members with KC?

Research into the genetics of KC is continuing. The genetic study which was the subject of Stephen Tuft's talk at our conference is looking for families with several members all diagnosed with KC. You'll find more details here https://www.keratoconus-group.org.uk/index.php/2022/10/26/do-you-have-fam...
by Anne Klepacz
Thu 27 Oct 2022 10:30 am
Forum: General Discussion Forum
Topic: The next steps in genetic research
Replies: 0
Views: 20286

The next steps in genetic research

This was the title of the talk given by Professor Stephen Tuft at our conference last month and you can find the video here https://www.youtube.com/watch?v=4AAdy3Y9jZs We were delighted to welcome a face to face audience plus a live stream audience for our first conference since the pandemic. But fo...
by Anne Klepacz
Sat 22 Oct 2022 10:02 am
Forum: General Discussion Forum
Topic: Late keratocnus diagnosis .. please help.
Replies: 3
Views: 1860

Re: Late keratocnus diagnosis .. please help.

Driving at night was the first thing that went for me. Being able to read a number plate in daylight is no indication of how safe we are. So whether you're 'legal' or not, if you don't feel safe with the halos and glare and the reduced vision at twilight (all of which applied to me) then you're righ...
by Anne Klepacz
Sat 22 Oct 2022 9:28 am
Forum: General Discussion Forum
Topic: Over 70s and DVLA
Replies: 8
Views: 4031

Re: Over 70s and DVLA

Thanks, Taylan, you beat me to it! Remarkably, the original changes were made seemingly without any consultation with optometrist or ophthalmologist professional bodies. So it looks as though questions from organisations like ours triggered AOP (the optometrists' professional body) to get involved. ...
by Anne Klepacz
Tue 18 Oct 2022 11:12 am
Forum: General Discussion Forum
Topic: Late keratocnus diagnosis .. please help.
Replies: 3
Views: 1860

Re: Late keratocnus diagnosis .. please help.

Hi Fatima and welcome, Please don't panic! KC is very variable between one individual and another, but any changes happen slowly over many months and years. If you've been getting reasonable vision with spectacles, then it sounds as though your KC is relatively mild. While most KC is diagnosed in th...
by Anne Klepacz
Mon 17 Oct 2022 10:10 am
Forum: General Discussion Forum
Topic: Moorfields referral
Replies: 2
Views: 1617

Re: Moorfields referral

As far as I know, you can either ask your Sidcup consultant to refer you, or do it through your GP. Though I suspect all hospitals are still struggling with COVID backlogs so you might have a wait to be seen. And it might be worth contacting PALS at Sidcup about the problems you're having there to s...
by Anne Klepacz
Mon 17 Oct 2022 10:04 am
Forum: General Discussion Forum
Topic: DMEK experience
Replies: 79
Views: 38084

Re: DMEK experience

I do hope it's good news when you're seen this week and you don't need any more interventions. It's been such a tough time for you. All fingers crossed.

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