UK Keratoconus Self-Help and Support Association

hi gareth, andrew, rosemary thank you for all your replies i'm actually a part time wedding photographer so am guilty of the flash thing myself lol, however i may change direction on that, as i worry about what if i'm having a really bad eye day on the day of a booking! looking more to taking and se...

hi rosemary i appreciate your comments and quite agree. although i can achieve 16 hrs tolerance in one eye most days, doesnt mean i ts totally pain free either, so there in lies another varible. how much pain one person can tolerate as opposed to another. some pain to one person could be unbearable ...

gareth thanks for that i'll give them a go and see how i get on. i was fitted with a new left lens a couple of weeks ago and initially it was very comfortable, but as you say , this heat isnt helping and i feel you may be right that that is the reason i feel discomfort at the moment. am also making ...

gareth thanks for that info. i assume that lubricating drops is different from lens wetting solution, what type of drops do you use,? are they available off the shelf or are they prescription? and how are they applied? ie do you take the lens out to apply or can they be applied with the lens in. i'm...

hi everyone was just reading some posts and was wondering about the legal definitions of blind v partially sighted etc. without my rgp's i cannot actually see the chart never mind read it, in fact out of my left eye i would have difficulty in seeing a bus, seriously. however with my lenses in , the ...

hi every body hope noone minds me making a suggestion. after having read through a large number of members posts , it seems to me that one of the main questions on peoples minds, particularly members who are newly diagnosed is where to go for the best care, and which high street optoms have the expe...

hi keerthi i joined the group not too long ago and am finding great comfort in knowing we are not alone. gareth, and andrew are quite right. only a qualified proffessional with experience in KC can answer the question of what stage youre at and what management system is best for you. it is a very in...

hiya michael i know exactly what you mean. people look into your eyes with astonishment and say wow do you know your eyes are red, in a way that makes you feel like some freak, and you think, no i didnt know that i thought the pain was my imagination. good luck with the eye exam, hope they get to th...

gareth now i understand how your sense of touch has become a useful side effect. like you say sooner or later we can discover the benefits, and appreciate more of what others take for granted. birdsong is probably a classic example keep up the good work my life passion ironically is photography, wei...

gareth you are so right, i find that my sense of touch is vastly improved and i find that i can find my way around my house better in the dark than with lights on. my memory seems to be good too as in i always seem to remember where i've put things, like keys lol. yes it is good that we can find pos...