UK Keratoconus Self-Help and Support Association

when I asked for things to be emailed to me which is actually my prefered format due to being legally blind they always tell me be it the hospital for different things, my gp even the dentist they cant send them by email as it may breach data protection, to which I remind them "what about the ...

"He also said that at my age the progression should be at or near 0 but I feel he only said that to counter the bad news of my limited options, and it ultimately might not be true"

From personal experience that is certainly not true.

KC is a progressive and debilitating eye disease.

Sad to hear that Lea but not surprised. even the signage and notices at NHS Eye Hospitals dont comply. "From then, NHS providers in England are mandated to provide blind and partially sighted patients with appointment reminders, letters and test results in accessible formats such as email or la...

Your rights -

http://www.rnib.org.uk/nb-online/access ... n-standard

Your rights -

http://www.rnib.org.uk/nb-online/access ... n-standard

Thank you for that Anne - "A French study has demonstrated that survival rates for partial (DALK) grafts, more commonly done these days, are considerably better. The endothelial cell loss in the first 5 years post graft was less than half of that seen in penetrating grafts (22% vs. 50%), and fr...

Thanks again KyD. I will ask my optom about the Quattro at my next appointment. The Boston Simplus is a cleaning soaking solution. My Optom prescribed the Ote after he noticed build up of cells, protein on the lens surface. You put a drop of it on the lens in the palm of your head rub it on with you...

Thanks KyD

Is the Boots sterile saline preservative free?

I use this for rinsing my lenses after using the ote cleaner and filling the lens before insertion At my optom I pay £3-40 which compared with the best price I can find on line is a good deal https://www.ebay.co.uk/itm/Sauflon-Saline-Preservative-Free-360ml/132010067093?epid=1531123021&hash=item...

This is what my optom recommends for my semi scleral rgp lens where I pay £7-20 for it. Best prices I can find on line are - https://www.ebay.co.uk/itm/4-x-120ML-Bausch-Lomb-Boston-Simplus-Exp-FEBRUARY-2019-Contact-Lens-Solution/263159540048?epid=2200441668&hash=item3d4587e950:g:KLUAAOSwEOpaAieJ...