Search found 39 matches

by morag
Sun 03 Jun 2007 5:39 pm
Forum: General Discussion Forum
Topic: irregular vessel growth
Replies: 32
Views: 14762

No its not PM, as it happens in-between also, its is not midlife either, as its been going on now for at least 15 – 20 years and I have been down both those roads. This is not a recent thing, it is defiantly something to do with the fact that the stitches to leaving it scared and it is a weak sect...
by morag
Sun 03 Jun 2007 9:13 am
Forum: General Discussion Forum
Topic: irregular vessel growth
Replies: 32
Views: 14762

I’m sorry I didn’t reply sooner but as an old sufferer you just get on with things!!!!!!!!! I’m no better off I really do believe the pain is related to my periods and the fluid retention on the body – hence the eye, nobody seems to want to listen. I had my graft when I was 18, I am now 44 s...
by morag
Sat 06 Jan 2007 5:21 pm
Forum: General Discussion Forum
Topic: FAMOUS
Replies: 28
Views: 14510

Mandy Pantinkin is this a male or female??
Surely there must be someone in the UK maybe the media needs too be contacted asking if there is anyone out there who would be willing to support the group and make the public more aware of what KC is and how it affects everyone??
Cheers
Del
by morag
Fri 05 Jan 2007 6:16 pm
Forum: General Discussion Forum
Topic: FAMOUS
Replies: 28
Views: 14510

Hi
It would be brilliant (in a good way) if we could find a Celeb to help make KC more understandable that would really help
Anyone know anyone ???
Del x
by morag
Wed 27 Dec 2006 6:11 pm
Forum: General Discussion Forum
Topic: irregular vessel growth
Replies: 32
Views: 14762

Hi The only options are: Stop wearing contact lenses Take steroid drops for the end of time De-stress yourself The last time the vessels were checked the were empty and dormant as I had changed my lens to a different kind and had managed to wean myself off the drops, but it looks like the vessels ha...
by morag
Wed 27 Dec 2006 4:34 pm
Forum: General Discussion Forum
Topic: irregular vessel growth
Replies: 32
Views: 14762

Sorry I wear lenses in both eyes(So I can drive and go to work and get through the day) but I have to take them out and put on the goldfish bowls to watch TV and cant read the tex on tv when there`s translation Sorry Thank you all for youe kindness it really does help Been to the doc and decided to ...
by morag
Wed 27 Dec 2006 3:02 pm
Forum: General Discussion Forum
Topic: irregular vessel growth
Replies: 32
Views: 14762

Thanks for that Yes everyone who I see about my eyes all are aware of the hormone thing I have repeatedly told them over the years and finally they see a connection My sight after graft was not really any better I have Kera the right eye too but will not allow grafting until I cannot see any longer ...
by morag
Wed 27 Dec 2006 1:28 pm
Forum: General Discussion Forum
Topic: irregular vessel growth
Replies: 32
Views: 14762

thanks J for your reply this is a problem that we think has been caused due to the wearing of lenses(of all sorts- I have tried them all I have been a guniepig for so many!!!) What I have noticed along the years is that a week before my periods are due it flares up and only just recently I have mana...
by morag
Wed 27 Dec 2006 12:06 pm
Forum: General Discussion Forum
Topic: irregular vessel growth
Replies: 32
Views: 14762

irregular vessel growth

hi can anyone help me please I had a graft 26 years ago (Im one of the old timers!!) I still have the original graft,I was one of the patients at Moorfields filmed to help sudents I was under Mr Rubens One problem I have is irregular vessel growth on the graft.the vessels did penetrated through the ...

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