UK Keratoconus Self-Help and Support Association

Hi Nadine :D From a purely personal point of view/experience I'll try to answer your questions. :D I benefitted from both my grafts from the moment they removed the patch the day following the ops. I went from not being able to see the chart at all to reading around four lines down. But from reading...

Blimey Sarah I can't believe all the bad things you've had happen with your graft. I hope the ulcer clears up quickly. My hubbie sometimes gets them so I know what they can be like.

Take care.

I think this is where you can cope with glasses so you get discharged from hospital care to the highstreet optom. I only use glasses but up until this year the hospital were adament that they saw me once a year (one doctor told me it would be for the rest of my life). My optom insists that I see he...

I'll raise my, er, bottle of water to that.

Happy New Year everyone.

I was told at the hospital once that as they lose track of people as they move house or stop going for check ups they don't have a clear idea of how grafts perform long term.

As my Mum had very mild KC this is a question I used to ask every doctor I saw. None could ever give me an answer and I have long since stopped asking. :D Like you Libby my own main concern is about the chances of my daughters having it, but I am a lot more relaxed about it now than I was this time ...

George the cornea? Love it! :lol: I never have named mine. Maybe if I had it would have made the early days when I found having other people's corneas hard to come to terms with a bit easier on me. If I remember rightly they used my refraction results as a guide as to how my grafts were 'settling' d...

First off congratulations on your upcoming wedding. :D I'd go along with Kirsten's suggestion. I got married just before I got my first lenses and knowing I'd be stopping wearing glasses soon I didn't want them on the wedding photos, so I got married without either. When people say the day goes by i...

Hi Donna :D Like so many other problems we come up against in life coping with our KC is one long rollercoaster ride of emotions. Up one minute, way down the next. The not knowing what's going to happen is the worst isn't it? Making choices and decisions you can't be sure are the right ones. The fee...

Hi Christine :D Happy Christmas to you too. :D Getting on so well with your lenses for so long is great. :D I never did get on with mine and ended up having both eyes grafted. Even though it's now the better part of eleven years since my last graft to be able to just pop my glasses on and see well s...