UK Keratoconus Self-Help and Support Association

I f you have already made a written request for a suitable or adapted till to cater for your visual impairment (a reasonable adjustment) and this has been ignored raise a grievance in accordance with the companies grievance procedure. Exhaust all their procedures before you go to an Employment Tribu...

Dont tolerate any abuse or harassment from your work colleagues. Ask HR to provide you with up to date company policies - disciplinary, etc which they will have to strictly comply with. If they do not notify them of their non compliance. Should it then go to an employment Tribunal you then have all ...

Emma how long have you worked there? I read your post about you giving your manager the KC group leaflet KC for your employer and him putting it in the B1N file. So you clearly are not going to get any support. The lack of help and support from ATW and RNIB is appalling but exactly the same as I enc...

Interesting since having a corneal transplant the eye lashes top and bottom have returned but in my other eye with KC there are no lashes. You may find this of interest. I have always believed there is a connecion with dry eye and KC. Dry eye>>>eye rubbing>>>>>KC - http://www.keratoconus-group.org.u...

Emma were you are at now there should be a health care plan in place by the NHS Health professionals to give you the support you need to get through this. These are the people who should be taking the lead, not you, not me not this charity. Until you get the backing you need you are extremely vulner...

Nothing on the horizon? -

http://www.keratoconus-group.org.uk/tic ... er_dt.php#

How many events a year does the charity have? 2015?, 2016? 2017?

Emma some links on this site I came across which may help although they are dated as since they were published the government has introduced the Equality Act - http://www.keratoconus-group.org.uk/publications/Information_for_Employers_A4.pdf http://www.keratoconus-group.org.uk/publications/Healthand...

Could someone please clarify if when you register on this forum you automatically become a member of the charity.

Cannot understand why access is not possible to access the information here by all registered forum users -
http://www.keratoconus-group.org.uk/mem ... index.html

Thanks for sharing your experience paganpunk1109 and sorry to read about your bad luck. Will be interesting to read your full storyand who is helping and supporting you now in your hour of need.

Best wishes