UK Keratoconus Self-Help and Support Association

Kerrie, I agree with Pat - most of us live in our sunglasses during the summer. I too get comments about my sunglasses - such as 'You can't possibly need your sunglasses today - it's not that sunny'. I won't even pop outside for five minutes on a bright a day. Even if I can keep my eyes open I know ...

Hi Stu, Yes, I've had this problem. Perfect vision in test conditions - but not so good in practice. One of the problems of KC is the multiple images we see - the ideal lens should merge all the images together but this isn't always the case. A few years ago I had a Rose K lens for my left eye. If t...

Sweet that's really good news that you can finally see out of both eyes. I'm also a patient at Moorfields. I wear RGP corneal lenses in both eyes. The right one is a Rose K lens - although the two lenses look similar. I know it can takes ages to get that initial appointment but the results are fanta...

Pat, I would agree with Sweet that it is probably not a solution problem - unless of course you are getting some cleaner in your eye. This is very painful! Ideally you should clean lenses after use, rinse in saline, and store in fresh solution. Before wearing a lens remove it from the storage case a...

Hi Pat, I'm sorry that you are taking time to get used to your new lens. It may be that the fit is not still not optimised. It can take several attempts to find the perfect lens - even from the experts. It is often said that fitting KC eyes is as much an art as a science. Is 3 or 4 hours normal? I w...

Hi Rohit, Personally speaking I would stay with Moorfields. They have been seeing me since 1996 have have managed to provide lenses with excellent vision. Oh, there have been bad times. A change of manufacturer, a few years ago, for my lenses, to the same prescription, caused the right eyes great pr...

My this has been a busy post today! Lynn thank you for your posts, I agree that it would be a very good idea to have a FAQ for: 'If I'm referred to a hospital for contact lens - do I still need eye tests?'. In my case although I've been attending MEH for years, apart from my initial appointment, I'v...

Sweet and Andrew,

No Sweet, at least in my case, the optometrists at the contact lens clinic at Moorfields are NOT doing a full eye test.

So although, Andrew, 'optometrists do what optometrists do' at the contact lens clinic they are only fitting contact lenses and not full testing eyes.

Lia

Tina, After all your lens fitting problems I do hope that you manage to get some glasses to see with. I'm a patient at Moorfield's and attend every six months for a contact lens check-up. When I first went there I had a full eye test, but in the last few years they have pointed out that they only 'c...

Hi Sue, Will glasses be any good? That's a difficult question. The answer is probably some good - but probably not as good as lenses. I have back-up glasses that give me some correction - there are others on this site who would rather wear lenses - or go without and not have glasses which give only ...