UK Keratoconus Self-Help and Support Association

Kim It was Nov 2000 when I was told I had KC, I was 32 and my little boy was 3 1/2 years old. I initially didn't need lenses until May 2002 and when RGP corneals were tried and found to be of no use to me I too moved to sclerals. For about 11 months I had few problems with them, other than those you...

Kim I am sorry I can't answer any of your questions as Ihave no experience of a graft however I am sure you will get some replies from others on the site. It is your childrens ages that interests me, my little boy is 7 (8 in March) and before his birth I had no KC or was not aware i had it. I wonder...

Hello Gareth When I was first fitted for RGP corneals back in July/Aug 2002 initiallially all looked ok and then all of a sudden by Sept/Oct 2002 the hospital were begining to worry (quite a lot it seemed) and disappointingly I ended up being down to a lens in my left eye only and for no more than 4...

Thanks John.

Kate There is a post from Mon 13/9 on the general discussion forum, which you may be able to help with, it is from Karen W, not sure if you have seen it. Thought I would send this little note hoping you would get a prompt from the forum. Hope Dales is still doing ok with his lenses. Best wishes, Sus...

Hello Karen Sorry to hear that your son is having problems with his eyes, it must be very frustrating for him. If you look in the section headed 'members' and go to page 5 entry number 97 is Kate Farminer, whose son Dale, also has Downs and KC. You can look up some of her posts from here (if you cli...

Dave

You could try http://www.opticiansproducts.fsnet.co.uk/eyepatches.htm

Ihave had a quick look on their site and they seem to have some.

Hope this helps

best wishes
Susan

Dear All I have just been reading the latest group newsletter and took interest in the article on the 'Letters' page from Malcolm & Christine Watson regarding their son Iain Watson. The article mentions 'Bilberry Extract, Eyebright or Euphrasis, multivitamin tablets zinc and vitamin B complex' a...

Hello Dave I thought I was having a rough time but you seem to be as well, it stinks doesn't it? Who knows what will happen next. By the sounds of it you have something that I was told several years ago could never happen (I asked as the cornea thinned would the eye burst eventually) Have they manag...

Alan I cant give u any professional advice, however from a personal point of view, (currently wearing scleral lenses) - I can say that even after 12 months with lenses, I still get some bubbles & more often than not, need to allow about 1/2 hour to put my lenses in to be on the safe side. I expe...